When I first joined the Duchenne community in 2009 at Children’s National Medical Center, I remember thinking that I was walking into a critical juncture in Duchenne history. There were three compounds in the clinic (drisapersen, ataluren, and eteplirsen aka Exondys 51) with more waiting in the wings to go into clinical trials, a drug […]
How far would you go for someone you love?
That’s the question that led to the birth of Jesse’s Journey when one family dared to dream about what’s possible after
learning the crushing news that Duchenne muscular dystrophy had become a part of their daily lives.
When John and Sherene Davidson learned that their middle son Jesse was diagnosed with Duchenne they charted a life
changing course for themselves-setting out to raise research funds to find the elusive cure.