Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

News & Resources

Rick Moss Appointed to the CORD Board of Directors

I am very happy to share with you today the news that Rick Moss, our Director of Advocacy and Partnerships, has joined the Board of Directors of the Canadian Organization for Rare Disorders (CORD). Over the past two years Rick has been working diligently on behalf of Jesse’s Journey in the area of advocacy with […]


15th annual Tory’s Tourney

Last weekend was the 15th annual Tory’s Tourney for Jesse’s Journey, hosted by the Provenzano family in Windsor. It was another sold-out tournament – over the last 15 years, this amazing event has raised more than $400,000 for Duchenne muscular dystrophy research. And they’ve never been rained out! (knock on wood). Representing Jesse’s Journey were […]


A Note from John Davidson, August 9th

20-years-ago-today was my 122nd day on the road and I had reached London, my home town. It had been four months since I dipped the toes of my running shoes in the cold water of the Atlantic Ocean in St. John’s, Newfoundland and set out to walk across Canada at the age of 52. There’s […]


Research Project Highlights

Dr. Ronald Cohn | Sick Kids Hospital, Toronto ON Dr. Cohn’s laboratory at SickKids has pioneered an approach to successfully treat the underlying cause of Duchenne that is the mutation in the DMD gene. Using the novel gene-editing technology CRISPR/Cas9, they removed large duplications in cells from patients affected by several diseases including multi-exon (18-30) […]


Congratulations to Zeinab Zammar – the 2018 recipient of the Michael Woodward/Jesse’s Journey Community Service Award

Jesse’s Journey is proud to sponsor The Michael Woodward/ Jesse’s Journey Community Service Award, given each year to a graduating student at Saunders Secondary School for exceptional achievement and outstanding service to others. This year, the award was presented to Zeinab Zammar. This young woman has shown extraordinary commitment to Saunders through her involvement in […]


Max’s Big Ride Crosses the Finish Line

The fourth annual Max’s Big Ride crossed the finish line in Ottawa on July 17, 2018. Andrew Sedmihradsky launched Max’s Big Ride in 2015, and each year since then he and his now 7-year-old son, Max, ride their cargo bike 600km from Hamilton, Ontario to Ottawa, Ontario to raise funds and awareness for Duchenne muscular […]


Clinical Trial Recruiting Patients in Canada

Sarepta Therapeutics is now recruiting patients at two Canadian centres for their ESSENCE clinical trial. ESSENCE Trial The ESSENCE trial is a 96-week, double-blind, placebo-controlled research study to evaluate the effectiveness and safety of investigational products, SRP-4045 and SRP-4053, in patients with Duchenne muscular dystrophy.[1] Canadian Locations The ESSENCE trial is currently recruiting patients at […]


A Note from John Davidson, May 31

20-years-ago today I was in Sackville, New Brunswick after crossing the Confederation Bridge on my 50th day on the road. This structure, which is 60 metres above sea level at its highest point is the world’s longest bridge over ice-covered water. It’s an engineering marvel, but its operators were not about to cut us any […]


Walk to Defeat Duchenne 2018

The 2018 Walk to Defeat Duchenne took place on Sunday, May 27 in London’s Springbank Park. More than 150 walkers joined us on a beautiful day to walk the 8.25km route. Some even completed the route four times, equaling the 33km that John Davidson walked every day for 286 days when he crossed Canada in […]


A Note from John Davidson, May 24

20-years-ago today I was in Halifax, Nova Scotia preparing to make the crossing to Prince Edward Island and province number three. Coming into Halifax, the RCMP officer behind me honked his horn to point out the cemetery where some of those who were lost in the 1912 sinking of the Titanic are buried. I had […]


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