Jesse's Journey Foundation

Defeat Duchenne. Change Lives.



SquadUP! - Ongoing

Jesse's Journey's newest fundraiser has raised over $11,000!

Thank you to all the participants and donors, keep gaming! Donations can be made at 

HKSA Volleyball Tournament - January 25, 2020

The University of Ottawa Human Kinetics Students Association (HKSA) is hosting its third annual Indoor Volleyball Tournament in support of Jesse's Journey and Duchenne muscular dystrophy.

Click here to register.

Defeat Duchenne Family Forum Montréal - May 2, 2020

Registration is now open for the Defeat Duchenne Family Forum taking place on Saturday, May 2, 2020, in Montréal, Québec at Shriners Hospitals for Children – Canada.

Presented by PTC Therapeutics and in partnership with La Force DMD, this unique educational event provides the opportunity for you - families and caregivers navigating the Duchenne journey, to come together with researchers, clinicians, and industry professionals for a day of education and inspiration.

Click here to register.

Walk to Defeat Duchenne - May 24, 2020

Save the date! The Walk to Defeat Duchenne will return on Sunday, May 24, 2020. Gather your friends and family, create a team, and register for the event in London, Ontario or host your own Walk anywhere in Canada.

Click here to learn more.

Looking to Volunteer for Jesse’s Journey? Fill out the form here


Past Events

Defeat Duchenne Family Forum Calgary - November 2, 2019

Join us on November 2nd, 2019 for our Defeat Duchenne Family Forum in Calgary, Alberta.

This unique event - tailored to families in Canada affected by Duchenne muscular dystrophy - features updates from researchers, clinical trials in Canada, standards of care, pharmaceutical progress, registries and why the matter, 'how to' advocate and much more!

Click here for more information and to register

Isaac's Trek for Treats - October 26, 2019

On October 26, 2019, the third annual Isaac’s Trek for Treats took place at Tanners Drive Park in Acton, ON to raise money for Jesse’s Journey, to fund Duchenne muscular dystrophy research. Isaac’s Trek for Treats is a family-friendly costume trail run along the path through Tanners Drive Woodlot.

Donations are still being accepted:  here.

Brian Connor's Rice Lake Challenge - August 24, 2019

It was another beautiful day at Rice Lake for the 11th annual Brian Connor's Rice Lake Challenge.

Cyclist, swimmers, paddle boarders and walkers all participated throughout the day raising more than $20,000!

To donate to Brian Connor's Rice Lake Challenge, click here

Brock Janes Golf Classic - August 24, 2019

It was another great day for the 11th annual Brock Janes Golf Classic.

More details from the day coming soon!

Max's Big Ride - June 3 - 9, 2019

Eight year old Max and his father Andrew are hitting the road with their family on June 3, 2019 for their fifth annual Max’s Big Ride and they would love your support! Click here for more information.

Fleetwood Country Cruize In - May 31, June 1 & 2

An automotive extravaganza like no other!

May 31, 2019
Big Top Show and Kickoff Party featuring:
Paul Revere’s Raiders
Mitch Ryder
Rare Earth's Peter Rivera
Gary Lewis & The Playboys

June 1
Car show - 7am-5pm
Big Top Buffet Dinner Show featuring Tony Orlando

June 2
Car show - 7am-5pm

For more information about the car show and tickets for the Big Top shows, visit

Sponsored By:

Walk to Defeat Duchenne - May 26, 2019

Register now for the Walk to Defeat Duchenne in Springbank Gardens, London ON. Create your personal fundraising page, collect pledges, and walk the route through Springbank on May 26! Click here for more details or to register.

Defeat Duchenne Family Forum and Celebration Dinner - May 25, 2019

Presented by: PTC Logo
Join us on May 25, 2019 for the first Defeat Duchenne Family Forum and Celebration Dinner.

This unique event – tailored to families in Canada affected by Duchenne muscular dystrophy – will feature updates about the latest research, clinical trials currently recruiting in Canada, the International Preferences for Duchenne Treatments study out of Johns Hopkins University, and more.

Click here for more details and to register.

London Honda BBQ - May 24 & 25

Join us at London Honda for our annual fundraising BBQ in support of Jesse's Journey! Make a donation and enjoy your lunch and find out more about the great work we are doing on May 24 and 25.

Virtual Walk-Run-Roll - February 1 - May 26, 2019

Join us for the 2nd annual Virtual Walk-Run-Roll! This virtual event is perfect for individuals, families, friends, or co-workers who want to raise funds to support Duchenne muscular dystrophy research and would prefer to walk, run, or roll in their communities.

Click here for more information about the Virtual-Walk-Run-Roll and to register!

HSKA Volleyball Tournament - January 20, 2019

Thank you to the Human Kinetics Students Association for hosting their second annual Indoor Volleyball Tournament for Duchenne Muscular Dystrophy! The event sold out and raised $900 for Duchenne research! Thank you!