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News & Resources

Max’s Big Beer to raise awareness about Duchenne

The Hamilton Spectator Hamilton’s Grain & Grit Beer Co. is teaming up with the local charity event Max’s Big Ride to brew the first ever “Max’s Big Beer.” The limited edition beer will go on sale in June with the hope of raising awareness about Duchenne muscular dystrophy. Fifty cents from every can sold will […]


Walk to Defeat Duchenne 2018

The 2018 Walk to Defeat Duchenne took place on Sunday, May 27 in London’s Springbank Park. More than 150 walkers joined us on a beautiful day to walk the 8.25km route. Some even completed the route four times, equaling the 33km that John Davidson walked every day for 286 days when he crossed Canada in […]


Solid Biosciences Announces New Preclinical Data at the American Society of Gene and Cell Therapy Annual Meeting

– Data Reinforce Potential of SGT-001 as an Important Treatment Candidate for DMD – – Company Continues to Advance Gene Therapy Portfolio – CAMBRIDGE, Mass., May 18, 2018 (GLOBE NEWSWIRE) — Solid Biosciences Inc. (NASDAQ:SLDB) today announced the presentation of new preclinical data from its gene therapy development programs for Duchenne muscular dystrophy (DMD). New […]


A Note from John Davidson, May 24

20-years-ago today I was in Halifax, Nova Scotia preparing to make the crossing to Prince Edward Island and province number three. Coming into Halifax, the RCMP officer behind me honked his horn to point out the cemetery where some of those who were lost in the 1912 sinking of the Titanic are buried. I had […]


A Note from John Davidson, May 17

20-years-ago today I reached New Glasgow, Nova Scotia on my 38th day on the road. I had arrived in North Sydney, Nova Scotia a week earlier and made my way south along the edge of Lake Bras d’Or, which is actually an inland sea, of partially fresh/salt water in the centre of Cape Breton. With […]


FDA Grants Orphan Drug Designation to Sarconeos for Duchenne Muscular Dystrophy

May 15, 2018 Today, BIOPHYTIS announced that the US Food and Drug administration (FDA) has granted orphan drug designation to its drug candidate, Sarconeos, for Duchenne Muscular Dystrophy (DMD). In a recent comment, Stanislas Veillet, CEO of BIOPHYTIS, stated: “The orphan drug designation that has just been granted by the FDA is a significant milestone for […]


A Note from John Davidson, May 10

20-years-ago today was a good news-bad news kind of day. The bad news is the driving rain and incredibly high winds sweeping across the highway at a place called Wreck House on the west coast of Newfoundland all the way down into Port-aux-Basques, the departure point for Cape Breton. The good news is that we [...]

Capricor Recruiting Duchenne Patients for Phase 2 Trial of CAP-1002

Capricor Therapeutics’ Phase 2 clinical trial to evaluate the safety and effectiveness of CAP-1002 in boys and young men with Duchenne muscular dystrophy (DMD) has started recruiting participants. The HOPE-2 trial (NCT03406780) is planned to enroll up to 84 participants ages 10 or older with advanced stages of the disease who have been treated with standard therapies, including glucocorticoids. From […]


A Note from John Davidson, May 3

20-years-ago today was my 24th day on the road and I had reached Stephenville, Newfoundland after passing through Corner Brook on the more mountainous western side of Newfoundland. At one-time Stephenville was the largest United States airbase in the world, not located on American soil. But that was long ago. It was raining, dark and [...]

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