The Effects of Duchenne Muscular Dystrophy on Families
The effects of Duchenne muscular dystrophy are not just physical manifestations experienced by the child. There are enormous emotional effects that impact the families of these children as well.
When John and Jesse Davidson set out to cross Ontario in 1995, they hit the road alone. They hadn’t yet met anyone else facing Duchenne muscular dystrophy. Through their journey together, and through John’s later crossing of Canada, they met many families who shared their own experiences with Duchenne muscular dystrophy.
Since that time, more than one hundred families affected by Duchenne muscular dystrophy have made Jesse’s Journey their journey, too. These families have come together to share their stories, support each other through difficult times, and raise money for research to help find a cure for Duchenne muscular dystrophy.
Please click the links below to learn more about some of these families.
If you would like to share your family’s story, please contact Manager, Marketing & Stakeholder Relations, Rochelle ten Haaf, at [email protected] or 519-645-8855.
November 17, 2020
“Making the decision to have a child is momentous. It is to decide forever to have your heart go walking around outside your body.” Author Elizabeth Stone perfectly articulates what it is like to become a parent: the unimaginable joy inextricably linked with an overwhelming sense of responsibility to protect and care for your child. […]
April 16, 2020
COVID-19 is having a significant impact on every aspect of our lives. While this is an uncertain time for all of us, the fight to defeat Duchenne continues. Below you’ll find Douglas Elton’s inspirational story. His message speaks to the heart of what we’re experiencing right now – conquering our fears, never losing hope, and […]
March 3, 2020
Walk with Jesse’s Journey to provide a beacon of light within what can otherwise be a very dark place. The Walk to Defeat Duchenne will return on Sunday, May 24, 2020 (rescheduled due to COVID-19 to Monday, September 7, 2020 – World Duchenne Awareness Day). Leading up to this very special date, families – like […]
November 11, 2019
Unless you’ve experienced it for yourself, it’s nearly impossible to understand the ramifications of finding out your loved one has Duchenne muscular dystrophy. Jesse’s Journey is lucky to have the support of families who are brave enough to share their stories because they know it’s the only way we can hope to inspire understanding and […]
April 23, 2019
How far would you go for someone you love? That’s a question our family never imagined we’d need to answer. But it turns out – with thousands of kilometres of travel; countless hours, “pokes” and treatments; moving homes; and every heart-wrenching step in between – we already have. We’re the Jancicka family, and we’re reaching […]
November 15, 2017
As first-time parents, we had the usual enormous hopes and dreams for our new baby son, Eli. Eli’s early months were pretty typical and although he wasn’t doing everything his baby friends were doing, we felt he was just on his own timetable. By age 19 months he was just beginning to walk and he […]
December 5, 2016
It was a staff member at Max’s daycare centre who first noticed something was wrong. He fell a lot and was a little behind the other kids when it came to climbing and moving about. We had a feeling that something wasn’t right when Max couldn’t master the ability to jump. We eventually took him to […]
March 31, 2016
Jesse Davidson was born in London, Ontario, Canada in 1980. He was one of three sons born to John and Sherene Davidson – Tyler is the eldest and Tim is the youngest. When he was six years old, Jesse was diagnosed with Duchenne muscular dystrophy. As a youngster in grade school Jesse was both a […]
April 1, 2016
My name is Amy Cavalier. My husband Josh and I live in Cambridge, with our two sons, Kaleb and Liam, and both boys have Duchenne muscular dystrophy. We got the diagnosis of Duchenne for both boys when a teacher at school (who knew another student with Duchenne) noticed that Kaleb (7 at the time) was […]
April 1, 2016
What would you do if you got the call? My wife Heather and I can still remember the day in November 2002 when Heather’s sister Darlene called to tell us their son Eric had been diagnosed with Duchenne muscular dystrophy. Darlene and her husband Mike were obviously distraught. It was a day that would change […]