Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

Our Purpose

As the only Canadian charity dedicated solely to funding research related to Duchenne, we are known and respected internationally, having granted more than $13.1M to research.  It is only through the support of donors, families and communities across Canada and around the world that Jesse’s Journey can continue to fund the most promising research into Duchenne muscular dystrophy.  And it is only through the advancement of research that the thousands of children who face Duchenne can have hope of a long life and be inspired to live their lives to the fullest today.

As a result of our grants to research over the course of 20 years, there have been major advancements in clinical discoveries, significant improvements in the quality of life for those living with Duchenne, and children with Duchenne are living longer lives.

We celebrate the remarkable progress made in the last two decades, and we recognize that the urgent need for research becomes more time-critical every day.

Our vision is a world free from the physical and emotional anguish of Duchenne muscular dystrophy. We know we can get there, and we know that research is the key. We also know this: if research doesn’t get funded, it doesn’t happen. We need your help to support:

  • Research into gene-replacement therapy
  • Research into improved cardiovascular function
  • The widely-acclaimed Canadian Neuromuscular Disease Registry

…and many more world-class projects working to Defeat Duchenne. Find out how you can get involved.

Watch our documentary, released in 2018, below.