Living with Duchenne muscular dystrophy can be isolating. As a rare disease diagnosed in 1 in every 5,000 boys, you may be the only family in your community and feel alone.
That’s why Amy Cavalier from the Duchenne Canadian Connection and Nicola Worsfold from Jesse’s Journey have created Canadian’s Talk Duchenne, a virtual social for parents and caregivers. There will be no formal agenda or topic, just an opportunity to share stories and exchange ideas with others who know what you’re going through.
If you have any questions, please feel free to reach out to:
Director of Research and Advocacy
When: Wednesday, January 27, 2021, starting at 7 p.m. EST
Please note the time zone is in eastern standard time; be sure to check and adjust the time you login accordingly.
The event will be hosted in English and you will receive the Zoom link in your registration confirmation email. We encourage you to turn on your video throughout the social and enable your microphone when speaking.