Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

Canadians Talk Duchenne

Living with Duchenne muscular dystrophy can be isolating. As a rare disease diagnosed in 1 in every 5,000 boys, you may be the only family in your community and feel alone.

That’s why Amy Cavalier from the Duchenne Canadian Connection and Nicola Worsfold from Jesse’s Journey have created Canadians Talk Duchenne, a monthly virtual social for parents and caregivers. There will be no formal agenda, just an opportunity to share stories and exchange ideas with others who know what you’re going through.

If you have any questions, please feel free to reach out to:

Nicola Worsfold

Director of Research and Advocacy

Jesse’s Journey

[email protected]

Next Social: Wednesday, November 24, 2021, starting at 7 p.m. EST

Socials will occur on the last Wednesday of every month. Please note the time zone is in eastern standard time; be sure to check and adjust the time you login accordingly.

Where: Zoom

The event will be hosted in English and you will receive the Zoom link in your registration confirmation email. We encourage you to turn on your video throughout the social and enable your microphone when speaking.



Save the dates in your calendar:

  • Wednesday, November 24, 2021
  • Wednesday, December 29, 2021