May 12, 2020
Due to COVID-19, the Defeat Duchenne Family Forum presented by PTC Therapeutics and in partnership with La Force DMD has been transformed from a one-day “in-person” program into a series of four virtual events taking place May 20 – 30, 2020. Join us as families and caregivers navigating the Duchenne journey across Canada come together with researchers, clinicians, and […]
May 12, 2020
The Walk to Defeat Duchenne presented by Sbenati Dentistry has been rescheduled to Monday, September 7, 2020 (World Duchenne Awareness Day) – this means more time to grow your team and raise vital funds! While making plans during this uncertain time is challenging, we hope you will refocus your efforts online – by encouraging your supporters to […]
February 27, 2020
Did you know approximately 1 in 12 Canadians, two-thirds of them children, are affected by a rare disease? Saturday, February 29, 2020, is Rare Disease Day, and we ask for your help in raising awareness of Duchenne muscular dystrophy. Though Duchenne is the most common fatal genetic disorder diagnosed in childhood, it is considered a […]
September 24, 2018
On Saturday, September 22 more than 100 people came out to the Jet Aircraft Museum in London, Ontario for the first “Pull a Plane to Defeat Duchenne”. This first-time event was held in partnership with Western University’s Commercial Aviation Management program. Participants teamed up to pull a 10,000lb, beautifully-restored Canadian T33 jet 50 metres across the […]
August 14, 2018
Last weekend was the 15th annual Tory’s Tourney for Jesse’s Journey, hosted by the Provenzano family in Windsor. It was another sold-out tournament – over the last 15 years, this amazing event has raised more than $400,000 for Duchenne muscular dystrophy research. And they’ve never been rained out! (knock on wood). Representing Jesse’s Journey were […]
May 29, 2018
The Hamilton Spectator Hamilton’s Grain & Grit Beer Co. is teaming up with the local charity event Max’s Big Ride to brew the first ever “Max’s Big Beer.” The limited edition beer will go on sale in June with the hope of raising awareness about Duchenne muscular dystrophy. Fifty cents from every can sold will […]
May 29, 2018
The 2018 Walk to Defeat Duchenne took place on Sunday, May 27 in London’s Springbank Park. More than 150 walkers joined us on a beautiful day to walk the 8.25km route. Some even completed the route four times, equaling the 33km that John Davidson walked every day for 286 days when he crossed Canada in […]
October 12, 2016
Burlington Post The 14th annual Eric’s Amazing Race Car Rally and Silent Auction (for Muscular Dystrophy and Genetic Research), will be held Saturday, Oct. 29. The fundraiser begins at noon at Bruce T. Lindley School, 2510 Cavendish Dr., and ends around 3 p.m. at the Burlington Legion, 828 Legion Rd. Registration will be held between […]
July 11, 2016
Congratulations and thanks to Max, Andrew and the entire Sedmihradsky family! Jesse’s Journey was pleased to be part of the crowd that welcomed the crew back to Hamilton as they entered Bayfront Park on July 1, 2016 !
