Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

News & Resources

Health Canada: Recommendations for National Rare Disease Strategy

Over the last month, Health Canada has opened up a consultation for organizations like Jesse's Journey, to provide recommendations on a discussion paper outlining ways to address access to high-cost rare disease drugs in Canada. There were three different ways to respond: Questionnaire Participate in a public town hall Written submission Jesse's Journey submitted input [...]

COVID-19 and Duchenne

COVID-19 (“coronavirus”) continues to impact our daily lives, and our hearts go out to all those who've been affected. Thank you to all of the health care professionals and everyone on the front lines of this pandemic. Jesse's Journey is here to support the Duchenne community and will continue to provide accurate and timely information [...]

Open Access: Recent studies on Duchenne muscular dystrophy

Recent studies on Duchenne muscular dystrophy (DMD) have greatly deepened our understanding of the primary and secondary pathogenetic mechanisms. Guidelines for the multidisciplinary care for Duchenne that address obtaining a genetic diagnosis and managing the various aspects of the disease have been established. In addition, a number of therapies that aim to restore the missing […]


2020 Year in Review

While we look ahead with hope, possibility, and vision, we take time to reflect on a year like no other. We started January 2020 with fresh excitement to celebrate our 25th anniversary and share a new three-year strategic plan focussed on engaging Duchenne families across Canada like never before. We are proud of what we [...]

2021: New Year Filled with Hope

We're starting 2021 filled with gratitude. Throughout November and December, you picked up the pieces to the complex puzzle of Duchenne muscular dystrophy and helped create the beautiful mosaic of HOPE. With your generosity, we surpassed our goal of $100,000 to invest in research that will allow boys and young men around the world to live longer, healthier lives. This would not [...]

Jesse’s Journey: Brand Awareness Survey

As Jesse’s Journey moves forward with future marketing and communication initiatives, we want to know: What does the Jesse’s Journey "brand" mean to you? We ask that you share your thoughts by completing a short survey - only about 10 minutes -  which will help provide us with insights and direction that will enhance our [...]

Jesse’s Journey + Muscular Dystrophy Canada (MDC): Return to School Webinar

Jesse's Journey and Muscular Dystrophy Canada (MDC) were very pleased to join forces to share information on returning to school for children with neuromuscular disorders. Many parents, caregivers, and guardians face new and difficult choices about how their child will return to school in the fall, such as deciding between in-person, virtual learning and home [...]

Congratulations: Dr. Rudnicki Elected as Fellow of the Royal Society

Jesse’s Journey would like to congratulate Dr. Michael Rudnicki, Chief Scientific Officer of Satellos Bioscience and a Jesse’s Journey research funding recipient, for being elected as a Fellow of the Royal Society, the United Kingdom’s national academy of sciences. The Royal Society is the world’s oldest and most esteemed scientific institution founded in 1660 and […]


Jesse’s Journey + Muscular Dystrophy Canada (MDC): Burden of Illness Study

Establishing the burden of illness for a rare disease, like Duchenne muscular dystrophy, is critical for Canada's access to medicines. Jesse's Journey has partially funded a burden of illness study currently underway by Muscular Dystrophy Canada (MDC), and we need your support! Please see the details below and complete the online survey before Monday, July [...]

Jesse’s Journey: 2019/20 Research Grants Announced

Since 1995, Jesse’s Journey has strongly believed in strong partnerships with academics and clinicians to fund the most promising research for Duchenne muscular dystrophy. This focus and fundraising effort have brought us to granting more than $13.1 million across 45 research projects. We have attracted applications from leading Duchenne researchers from all over the world including the […]


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