Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

News & Resources

Reclaim the Day

We’re pleased to share this message from our friends at Stand for Duchenne about a new initiative they have created called Reclaim the Day. Many Duchenne families, including ours, will never forget the day their children were diagnosed. The feeling of shock, panic, and helplessness is only a fraction of the emotions that we all […]


Pull a Plane to Defeat Duchenne

On Saturday, September 22 more than 100 people came out to the Jet Aircraft Museum in London, Ontario for the first “Pull a Plane to Defeat Duchenne”. This first-time event was held in partnership with Western University’s Commercial Aviation Management program. Participants teamed up to pull a 10,000lb, beautifully-restored Canadian T33 jet 50 metres across the […]


Jesse’s Journey Welcomes New Executive Director

We have a new leader of the team here at Jesse’s Journey.   We are pleased to announce that Perry Esler will be assuming the role of Executive Director on October 1st. Perry is no stranger to Jesse’s Journey, having been on the road with us in 1995. He comes to us with more than […]


Rick Moss Appointed to the CORD Board of Directors

I am very happy to share with you today the news that Rick Moss, our Director of Advocacy and Partnerships, has joined the Board of Directors of the Canadian Organization for Rare Disorders (CORD). Over the past two years Rick has been working diligently on behalf of Jesse’s Journey in the area of advocacy with […]


15th annual Tory’s Tourney

Last weekend was the 15th annual Tory’s Tourney for Jesse’s Journey, hosted by the Provenzano family in Windsor. It was another sold-out tournament – over the last 15 years, this amazing event has raised more than $400,000 for Duchenne muscular dystrophy research. And they’ve never been rained out! (knock on wood). Representing Jesse’s Journey were […]


A Note from John Davidson, August 9th

20-years-ago-today was my 122nd day on the road and I had reached London, my home town. It had been four months since I dipped the toes of my running shoes in the cold water of the Atlantic Ocean in St. John’s, Newfoundland and set out to walk across Canada at the age of 52. There’s […]


Research Project Highlights

Dr. Ronald Cohn | Sick Kids Hospital, Toronto ON Dr. Cohn’s laboratory at SickKids has pioneered an approach to successfully treat the underlying cause of Duchenne that is the mutation in the DMD gene. Using the novel gene-editing technology CRISPR/Cas9, they removed large duplications in cells from patients affected by several diseases including multi-exon (18-30) […]


Congratulations to Zeinab Zammar – the 2018 recipient of the Michael Woodward/Jesse’s Journey Community Service Award

Jesse’s Journey is proud to sponsor The Michael Woodward/ Jesse’s Journey Community Service Award, given each year to a graduating student at Saunders Secondary School for exceptional achievement and outstanding service to others. This year, the award was presented to Zeinab Zammar. This young woman has shown extraordinary commitment to Saunders through her involvement in […]


Max’s Big Ride Crosses the Finish Line

The fourth annual Max’s Big Ride crossed the finish line in Ottawa on July 17, 2018. Andrew Sedmihradsky launched Max’s Big Ride in 2015, and each year since then he and his now 7-year-old son, Max, ride their cargo bike 600km from Hamilton, Ontario to Ottawa, Ontario to raise funds and awareness for Duchenne muscular […]


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