Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

News & Resources

COVID-19 and Duchenne

With the growing concerns regarding COVID-19 (“coronavirus”) across Canadian communities and the world, our hearts go out to all those who've been impacted. We also want to show our profound gratitude to the health care professionals and everyone on the front lines of this pandemic. Jesse's Journey is here to support the Duchenne community during [...]


Catabasis has shared its March 2020 update: Catabasis provided an update regarding COVID-19 and Duchenne, FAQ’s, and shared the presentation slides from the MDA Virtual Clinical Trials Session. March 2020 – Catabasis Connection Issue 25 Edasalonexent Update:  In Duchenne, the loss of dystrophin leads to chronic activation of NF-kB, which is a key driver of […]

Defeat Duchenne Family Forum: Postponed

With the growing concerns regarding COVID-19 (“coronavirus”) across Canadian communities and the world, we want to provide an update on the Defeat Duchenne Family Forum scheduled for Saturday, May 2, 2020, in Montréal, Québec at Shriners Hospitals for Children – Canada. Jesse’s Journey and La Force will be postponing the event until later in the […]

Registration Now Open: Walk to Defeat Duchenne

Registration is now open for the 2020 Walk to Defeat Duchenne presented by Sbenati Dentistry. Gather your friends and family, create a team, and register for the event in London, Ontario or host your own Walk anywhere in Canada on Sunday, May 24, 2020. Help raise awareness and vital funds to further the mission to #defeatduchenne. […]

Catabasis Connection – Issue 24

Catabasis has shared its February 2020 update: “February is all about the heart and that’s a big focus for us, too! Because the cardiac function is so vital to those affected by Duchenne, we’re passionate to learn more about the heart and edasalonexent in our Phase 3 PolarisDMD trial. In young boys affected by Duchenne, […]

Rare Disease Day 2020

Did you know approximately 1 in 12 Canadians, two-thirds of them children, are affected by a rare disease? Saturday, February 29, 2020, is Rare Disease Day, and we ask for your help in raising awareness of Duchenne muscular dystrophy. Though Duchenne is the most common fatal genetic disorder diagnosed in childhood, it is considered a […]

New Neuromuscular Network for Canada

Jesse’s Journey is proud to represent the Duchenne community in the new neuromuscular network for Canada, NMD4C (NMD for Canada). The neuromuscular network for Canada brings together the country’s leading clinical, scientific, technical and patient expertise to improve care, research and collaboration in neuromuscular disease. Launched in January 2020 with funding from the Canadian Institutes of Health […]

Celebrate Past – Ignite New Vision

2020 is an exciting year for Jesse’s Journey as we celebrate our past and ignite a bold new vision for our future. This year marks the 25th anniversary of the organization as our founder, John Davidson, set out on an incredible mission to push his son, Jesse, across Ontario in his wheelchair – a trek of 3,339 […]

New Year Update from Santhera Pharmaceuticals

Santhera Pharmaceuticals have shared their January update.    “Our main focus in the U.S. in the first half of the year is to bring the SIDEROS clinical trial to full enrollment and we ask the community’s help, now more than ever, to achieve this goal. The SIDEROS clinical trial, which investigates the safety and efficacy […]

Sarepta Therapeutics Announces Partnership with Roche

Sarepta Therapeutics Announces Partnership with Roche in Territories Outside the United States for its Investigational Micro-dystrophin Gene Therapy for Duchenne Muscular Dystrophy, SRP-9001 “…Sarepta and Roche have entered into a licensing agreement that would provide Roche exclusive rights to SRP-9001 (AAVrh74.MHCK7.micro-dystrophin) outside of the United States. As a mission-driven organization committed to families impacted by […]

Disclaimer: Jesse's Journey provides the above information as a potential resource for our visitors. We do not verify the accuracy or truth of third party information and cannot be responsible for the quality of the information or services provided by other organizations and mentioned on our website, nor do we endorse any service, product, treatment or therapy.