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News & Resources

Max’s Big Ride Crosses the Finish Line

The fourth annual Max’s Big Ride crossed the finish line in Ottawa on July 17, 2018. Andrew Sedmihradsky launched Max’s Big Ride in 2015, and each year since then he and his now 7-year-old son, Max, ride their cargo bike 600km from Hamilton, Ontario to Ottawa, Ontario to raise funds and awareness for Duchenne muscular […]


Clinical Trial Recruiting Patients in Canada

Sarepta Therapeutics is now recruiting patients at two Canadian centres for their ESSENCE clinical trial. ESSENCE Trial The ESSENCE trial is a 96-week, double-blind, placebo-controlled research study to evaluate the effectiveness and safety of investigational products, SRP-4045 and SRP-4053, in patients with Duchenne muscular dystrophy.[1] Canadian Locations The ESSENCE trial is currently recruiting patients at […]


A Note from John Davidson, May 31

20-years-ago today I was in Sackville, New Brunswick after crossing the Confederation Bridge on my 50th day on the road. This structure, which is 60 metres above sea level at its highest point is the world’s longest bridge over ice-covered water. It’s an engineering marvel, but its operators were not about to cut us any […]


Walk to Defeat Duchenne 2018

The 2018 Walk to Defeat Duchenne took place on Sunday, May 27 in London’s Springbank Park. More than 150 walkers joined us on a beautiful day to walk the 8.25km route. Some even completed the route four times, equaling the 33km that John Davidson walked every day for 286 days when he crossed Canada in […]


A Note from John Davidson, May 24

20-years-ago today I was in Halifax, Nova Scotia preparing to make the crossing to Prince Edward Island and province number three. Coming into Halifax, the RCMP officer behind me honked his horn to point out the cemetery where some of those who were lost in the 1912 sinking of the Titanic are buried. I had […]


A Note from John Davidson, May 17

20-years-ago today I reached New Glasgow, Nova Scotia on my 38th day on the road. I had arrived in North Sydney, Nova Scotia a week earlier and made my way south along the edge of Lake Bras d’Or, which is actually an inland sea, of partially fresh/salt water in the centre of Cape Breton. With […]


A Note from John Davidson, May 10

20-years-ago today was a good news-bad news kind of day. The bad news is the driving rain and incredibly high winds sweeping across the highway at a place called Wreck House on the west coast of Newfoundland all the way down into Port-aux-Basques, the departure point for Cape Breton. The good news is that we [...]

A Note from John Davidson, May 3

20-years-ago today was my 24th day on the road and I had reached Stephenville, Newfoundland after passing through Corner Brook on the more mountainous western side of Newfoundland. At one-time Stephenville was the largest United States airbase in the world, not located on American soil. But that was long ago. It was raining, dark and [...]

May is Defeat Duchenne Month

May 1 marks the beginning of Defeat Duchenne Month! During the month of May, families, businesses, and schools across Canada raise funds and awareness for Duchenne muscular dystrophy research. It’s easy to take part in Defeat Duchenne Month! Here are a few fundraising ideas: Gather a group of friends, family members, or co-workers and register for […]


Portrait of Duchenne: John and Jesse

John Davidson recently sat down with La Force DMD, a Duchenne muscular dystrophy advocacy organization based out of Quebec, as part of their “Portrait of Duchenne” series. They are releasing a series of videos featuring stories with those who face Duchenne muscular dystrophy every day – patients, parents, family members, and researchers. In his interview, […]


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