Jesse's Journey Foundation

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News & Resources

A Note from John Davidson, April 26

Editor’s Note: Just before I write my 20-years-ago today piece, I want to thank all those who attended the anniversary gala in London on April 10th. We premiered a new documentary at that time and we had greetings from Ottawa. I am providing the links for these pieces in the hope that you will enjoy [...]

A Note from John Davidson, April 19

20-years-ago today it was constant rain and bitter cold as I moved along the Trans-Canada Highway, finishing my day in Glovertown, Newfoundland. It’s been a soggy week. My soaking wet wind suit has been flapping tight against my body like a flag snapping in a stiff wind. The rain is always there and eventually it [...]

National Volunteer Week

It’s National Volunteer Week in Canada and we want to take a moment to thank all of the incredible volunteers who generously give their time to Jesse’s Journey. When John Davidson walked across Canada in 1998, volunteers played a crucial role in keeping him moving. From coast to coast, so many dedicated people took time […]

A Note From John Davidson, April 10

As I promised you, this is the first of the weekly postings as I look back at the walk across Canada that began 20 years ago today. So here we go! This is it. Day number one in St. John’s, Newfoundland. After seven months of training, today the distance really starts to mean something. Looking [...]

Welcome to 2018!

It’s 2018 – happy new year! When the calendar changes over, it always seems to bring about feelings of a fresh start, another chance to achieve any of the goals that haven’t been checked off the “to do” list yet. For Jesse’s Journey, 2018 isn’t just another year. We’re celebrating the 20th anniversary of John […]

First Duchenne Muscular Dystrophy Patient Dosed in Systemic Microdystrophin Gene Therapy

HACKENSACK, N.J., Jan. 17, 2018 /PRNewswire-USNewswire/ — Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne), announced that the first Duchenne patient has been dosed with microdystrophin gene therapy by Dr. Jerry Mendell, Dr. Louise Rodino-Klapac, and their team at Nationwide Children’s Hospital. This trial was funded in part by a $2.2 million grant from […]

Duchenne Research: 2017 in Review

2017 has been an exciting year for Duchenne muscular dystrophy research! As we get close to the end of the year, we’re looking back at some of the stories that caught our attention. You can find these and other news stories here. Jesse’s Journey grants more than $1 million internationally to Duchenne researchers In May, […]

#ThankYouThursday – 20 years of progress

On November 28, we celebrated Giving Tuesday – a day when people come together to celebrate philanthropy and support their favourite causes. Today, it’s Thank You Thursday. Today, we’re saying Thank You to everyone who has supported Jesse’s Journey for more than 20 years. It’s amazing to look back and see how far we have […]

Sarepta Therapeutics and Nationwide Children’s Hospital Announce FDA Clearance of IND for Micro-Dystrophin Gene Therapy Program for the Treatment of Duchenne Muscular Dystrophy

CAMBRIDGE, Mass., Nov. 06, 2017 (GLOBE NEWSWIRE) — Sarepta Therapeutics, Inc. (NASDAQ:SRPT), a commercial-stage biopharmaceutical company focused on the discovery and development of precision genetic medicines to treat rare neuromuscular diseases, today announced that Nationwide Children’s Hospital has received clearance from the U.S. Food and Drug Administration (FDA) for its Investigational New Drug (IND) application […]

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