Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

News & Resources

#ThankYouThursday – 20 years of progress

On November 28, we celebrated Giving Tuesday – a day when people come together to celebrate philanthropy and support their favourite causes. Today, it’s Thank You Thursday. Today, we’re saying Thank You to everyone who has supported Jesse’s Journey for more than 20 years. It’s amazing to look back and see how far we have […]


Sarepta Therapeutics and Nationwide Children’s Hospital Announce FDA Clearance of IND for Micro-Dystrophin Gene Therapy Program for the Treatment of Duchenne Muscular Dystrophy

CAMBRIDGE, Mass., Nov. 06, 2017 (GLOBE NEWSWIRE) — Sarepta Therapeutics, Inc. (NASDAQ:SRPT), a commercial-stage biopharmaceutical company focused on the discovery and development of precision genetic medicines to treat rare neuromuscular diseases, today announced that Nationwide Children’s Hospital has received clearance from the U.S. Food and Drug Administration (FDA) for its Investigational New Drug (IND) application […]


Jesse’s Journey Has Lost a Dear Friend

Angie Stewart  September 1 1962 – October 18 2017 Jesse’s Journey has lost a dear friend. Angie Stewart was the wife of Ron (Sam) and mother of 2 boys: Steven (who had Duchenne muscular dystrophy and passed away in 2009) and Matthew. Angie was a beautiful person and an inspiration to everyone she met. Her […]


Jerry Mendell, in PPMD Webinar, Details Plans for Possible Trial of Duchenne Gene Therapy

In a recent webinar, Dr. Jerry Mendell with Nationwide Children’s Hospital rolled out plans for a Phase 1/2a clinical trial of a new gene therapy for Duchenne’s muscular dystrophy (DMD). Final go-ahead for the trial awaits U.S. Food and Drug Administration (FDA) approval of an Investigational New Drug (IND) application1 made for the therapy and its testing. But Mendell is […]


Advocating for Canadians affected by Duchenne

As part of our latest strategic plan, Jesse’s Journey identified a need that we felt we were well-suited to address. Recently, in Europe and the U.S., we have seen new treatments approved for boys with Duchenne and even more that are currently in clinical trials. However, they are very expensive and have had challenges getting […]


MicroRNA-29 overexpression by adeno-associated virus suppresses fibrosis and restores muscle function in combination with micro-dystrophin

Our overall goals include developing meaningful treatment for DMD boys at any stage of disease and one of the challenges to treat DMD is the accumulation of fibrosis or scar tissue as muscle loss progresses.  We have previously demonstrated a way to replace the missing dystrophin gene with a miniature dystrophin using gene therapy.  We […]


Eric’s Amazing Race Car Rally for DMD research Oct. 29 in Burlington

Burlington Post The 14th annual Eric’s Amazing Race Car Rally and Silent Auction (for Muscular Dystrophy and Genetic Research), will be held Saturday, Oct. 29. The fundraiser begins at noon at Bruce T. Lindley School, 2510 Cavendish Dr., and ends around 3 p.m. at the Burlington Legion, 828 Legion Rd. Registration will be held between […]


New fundraising events added to Rice Lake Challenge

from Northumberland Today on August 17, 2016 The eighth annual Brian Connor Rice Lake Challenge for Jesse’s Journey has a new twist this year. In fact, there are a few new items to add along with the swim across Rice Lake on Saturday, Aug. 27. Of course there will be the usual 4.5 kilometre swim across […]


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