The Defeat Duchenne Family Forum is coming to Calgary on November, 2nd 2019.
This unique event – tailored to families in Canada affected by Duchenne muscular dystrophy – features updates from researchers, clinical trials in Canada, standards of care, pharmaceutical progress, registries and why the matter, ‘how to’ advocate and much more!
Defeat Duchenne Family Forum | 9 AM – 4 PM
Social & Vendor Fair | 4 PM – 6PM
The following are topics we will cover through various presentations with subject matter experts. Updates will be provided through our communication to registered attendees with an early draft agenda posted by end of August.
What is on the Horizon
Standards of Care
Venue: Acclaim Hotel Calgary Airport
If you are planning to stay overnight in Calgary, either Friday or Saturday click here to reserve a room at the Acclaim Airport Hotel at a special rate starting at $109/night. Please make sure you use the code 1102JJ to receive this rate. If you require an accessible room please call the hotel at 1-403-291-8000 or toll-free at 1-855-499-0001.
This block room rate will be available until October 25th, 2019.
Please note: We are unable to provide childcare services for this event.
See below for photos of our Family Forum in London May 25th and hear from some of the parents who attended.