Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

Defeat Duchenne Family Forum – Calgary

The Defeat Duchenne Family Forum is coming to Calgary on November, 2nd 2019. 

This unique event – tailored to families in Canada affected by Duchenne muscular dystrophy – features updates from researchers, clinical trials in Canada, standards of care, pharmaceutical progress, registries and why the matter, ‘how to’ advocate and much more!

Defeat Duchenne Family Forum | 9 AM – 4 PM

Social & Vendor Fair | 4 PM – 6PM

DRAFT AGENDA

The following are topics we will cover through various presentations with subject matter experts.  Updates will be provided through our communication to registered attendees with an early draft agenda posted by end of August.

Understanding Duchenne

What is on the Horizon

Standards of Care

Advocacy 101

Care Guidelines

Venue: Acclaim Hotel Calgary Airport

Accommodation

If you are planning to stay overnight in Calgary, either Friday or Saturday click here to reserve a room at the Acclaim Airport Hotel at a special rate starting at $109/night. Please make sure you use the code 1102JJ to receive this rate. If you require an accessible room please call the hotel at 1-403-291-8000 or toll-free at 1-855-499-0001.

This block room rate will be available until October 25th, 2019.

Please note: We are unable to provide childcare services for this event.

If you have any questions please contact us by calling 519-645-8855

For general information & registration: Seana Roberts at seana@jessesjourney.com

For Conference Agenda & Content: Rick Moss at rick@jessesjourney.com

See below for photos of our Family Forum in London May 25th and hear from some of the parents who attended.

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