Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

Defeat Duchenne Family Forum – Montréal

Presented by PTC Therapeutics and in partnership with La Force DMD, this unique educational event provides the opportunity for you – families and caregivers navigating the Duchenne journey, to come together with researchers, clinicians, and industry professionals for a day of education and inspiration. More than that, the Defeat Duchenne Family Forum provides a support network. A connection opportunity for you to know that they are not alone and together, we can defeat Duchenne. Registration is free, and the day includes take-away resources and all meals (breakfast, lunch, and snacks).

What: Defeat Duchenne Family Forum

When: Saturday, May 2, 2020 | 9 a.m. – 4 p.m.

Followed by

Social and Vendor Fair from 4 – 6 p.m.

Where: Shriners Hospitals for Children – Canada  (1003 Decarie Blvd, Montréal, Québec H4A 0A9)

Registration:

Key Note Speaker

Dr. Jacques P. Tremblay

Dr. Jacques P. Tremblay received a Ph.D. in Neuroscience from the University of California at San Diego in 1974. Since that time, he has been at Laval University as a postdoctoral researcher, Professor and Director of the Department of Anatomy. He is currently Full Professor in the Department of Molecular Medicine. He has worked specifically on myoblast transplantation as a treatment for Duchenne muscular dystrophy. He has conducted a Phase I clinical trial of that potential therapy and he is currently conducting with Dr. Craig Campbell a Phase I/II clinical trial of that therapeutic approach. For the last 3 years, he also worked on gene correction with the CRISPR/Cas9 technology for Duchenne muscular dystrophy, Friedreich’s Ataxia and Familial Alzheimer’s disease. This new exciting technology permits to correct mutations responsible for many hereditary diseases.

Presentation Summary:

Dr. Tremblay will provide an overview of the basics of genes, messenger RNA and proteins and build a gradual understanding of how mutations in the dystrophin gene lead to Duchenne or Becker muscular dystrophy. He will then present the different therapeutic approaches currently investigated around the world: prednisone, deflazacort, myoblast transplantation, exon skipping, micro-dystrophin and correction of the dystrophin gene with the new CRISPR/Cas9 technology.

Support the event:

We invite you to join Canada’s only educational program for families living with Duchenne muscular dystrophy, the Defeat Duchenne Family Forum, by becoming a vital sponsor. Supporters like you help provide the critical funds needed to ensure boys and men living with Duchenne and their families are provided with education and support throughout their journey. Click the links below to see the various sponsorship opportunities available. We are pleased to discuss the customization of any of our sponsorship levels to provide you with the ideal package.

Sponsorship Package – English

Sponsorship Package – French

This fund ensures patients, families and caregivers have access to the only educational programs in Canada specific for Duchenne, by helping them with transportation, accomodation, and food costs.

Family Assistance Fund – English

Family Assistance Fund – French

We invite you to join Canada’s only educational program for families living with Duchenne muscular dystrophy, the Defeat Duchenne Family Forum, by becoming an event vendor. The Defeat Duchenne Family Forum is a perfect marketing platform in which to meet new customers, maximize your exposure and directly engage with patients and families living with Duchenne muscular dystrophy.

Vendor Package – English

Vendor Package – French

Venue: Shriners Hospitals for Children – Canada

Logistics: Accomodation and Travel

Registration is free, and the day includes take-away resources and all meals (breakfast, lunch, and snacks). Please notify us of any dietary restrictions by emailing: info@jessesjourney.com.

The event will be fully bilingual and translation services will be available.

Financial assistance may be available if the travel and accomodation costs are barriers to your attendance. Please contact us for more informatiohn: info@jessesjourney.com.

Accommodation:

We have put a hold on rooms at Le Nouvel Hotel and Spa at a discounted rate of $139 (+ tax). The booking code is: 860975 and you can book online at www.lenouvelhotel.com or by calling +1-514-931-8841.

Below are alternative hotel options, however, please explore and select the best accommodation for your needs:

Hotel Ruby Foo’s

7655 Decarie Blvd, Montreal, Quebec H4P 2H2, Canada

514-731-7701

(16 adapted rooms – no a walk in shower)

Residence Inn by Marriott Montreal Westmount

2170 Lincoln Ave, Montreal, Quebec H3H 2N5, Canada

514-935-9224

(Renovations may be completed by May 2020)

Holiday Inn & Suites Montreal Centre-ville Ouest

1390 René-Lévesque Blvd W, Montreal, Quebec H3G 0E3, Canada

514-935-7999

(4 adapted rooms)

2020 Sponsors:

Presenting Sponsor

Silver Sponsors

In Partnership With

Italfarmaco

Catabasis