Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

Defeat Duchenne Webinar Series

Jesse’s Journey is committed to bringing together specialists and experts to speak on the topics you – the Canadian Duchenne community – have said you want to learn about.

In 2019/20, Jesse’s Journey hosted three educational webinars for more than 400 attendees, including topics such as “Research Funding in Canada,” “COVID-19 and Duchenne”, and “Back to School Considerations for Individuals Living with Muscular Dystrophy.” This year, our first webinar will focus on:

What: Understanding and Managing Behaviour in DMD

Presented by Dr. Natalie Truba, Clinical Psychologist at Nationwide Children’s Hospital in Columbus, Ohio

Dr. Truba will discuss the emotional, behavioural and cognitive challenges commonly experienced by boys with Duchenne muscular dystrophy and manifesting girl carriers, along with providing a broad overview of strategies that may help you better manage challenging behaviours. She will also review insights regarding the impact of COVID-19 and identify strategies for adaptive coping during the pandemic. 

When: Tuesday, June 29, 2021, from 1-3 p.m. EDT

Where: Zoom

Who: This webinar is open to parents and caregivers, extended family, and Duchenne professionals (such as aides and OT/PT providers, for example, those involved in managing behaviour in the context of care/therapies).


You will receive the secure Zoom link in your registration confirmation email. Please be sure to check your spam/junk mail to ensure you have the confirmation before event day. If you have any questions or difficulties, please contact:

Matt Gennaro

Coordinator, Administration and Community Engagement