Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

Defeat Duchenne Webinar Series

Jesse’s Journey is committed to bringing together specialists and experts to speak on the topics you – the Canadian Duchenne community – have said you want to learn about.

In 2019/20, Jesse’s Journey hosted three educational webinars for more than 400 attendees, including topics such as “Research Funding in Canada,” “COVID-19 and Duchenne”, and “Back to School Considerations for Individuals Living with Muscular Dystrophy.” This year, our first webinar focussed on:

What: Understanding and Managing Behaviour in DMD

Presented by Dr. Natalie Truba, Clinical Psychologist at Nationwide Children’s Hospital in Columbus, Ohio

Dr. Truba discussed the emotional, behavioural and cognitive challenges commonly experienced by boys with Duchenne muscular dystrophy and manifesting girl carriers, along with providing a broad overview of strategies that may help you better manage challenging behaviours. She also reviewed insights regarding the impact of COVID-19 and identifed strategies for adaptive coping during the pandemic. 

Click the following link to watch the recording from Tuesday, June 29, 2021: https://youtu.be/62ItDzJw_z8.

We want to support you in the most meaningful and impactful way to you and your time. Please send any suggestions for future educational activities to: info@jessesjourney.com.