Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

Duane’s Challenge

Duane’s fight to defeat Duchenne muscular dystrophy began when he met his wife, Karen, 15 years ago. Her brother, Kevin, sadly passed away from the disease, and her 23-year old nephew, Ricky, also has Duchenne. But it wasn’t until 2009 that Duane fully understood what it’s like to live with Duchenne, as their youngest son, James, received the diagnosis.

As a family, Duane and Karen are optimistic that there will be a cure in James’ lifetime. Until then, they want to give him every opportunity to experience as much as possible. Today, James is a very loving and musical 11-year old who loves all things British pop culture, from The Beatles to Queen and Monty Python. This year has been tough with the pandemic, but James and Duane have taken up ice fishing and tried to get out as much as possible walking their German shepherd puppy, Zeus, when the weather allows.

To help raise awareness and funds for Duchenne, Duane is challenging himself with the 4x4x48 Challenge from March 5-7, where he will run 4 miles every 4 hours for 48 hours. You can support Duane by donating below and helping him reach his fundraising goal of $790 ($10 for every exon) or go the extra mile by fundraising and completing the 4x4x48 Challenge alongside Duane.

Are you interested in participating in the 4x4x48 challenge?

Give the Gift of Hope

Complete the safe and secure online donation form below to support Duane’s challenge.