Jesse's Journey Foundation

Defeat Duchenne. Change Lives.


Since 1995, Jesse’s Journey has built a foundation of strong partnerships with scientists and families dedicated to discovering treatments and a cure for Duchenne muscular dystrophy. We believe in funding projects with the greatest chance of translating to clinical practice in a timely, and affordable manner. This effort has brought us to granting more than 14.8 million dollars across 50 research projects, attracting applications from leading Duchenne researchers from around the world.

How does Jesse’s Journey choose who to fund?

Jesse’s Journey invites research proposal focused on treating and improving the lives of individuals living with Duchenne muscular dystrophy. Successful proposals are expected to be of high scientific merit, demonstrate a clear, probable and timely path to clinical implementation that is cost-effective, and have the most significant impact on boys and young men living with Duchenne. Research groups funded by Jesse’s Journey are highly encouraged to be open to collaboration with other investigators and open to exploring additional partnerships with other foundations.

Click the button below to see the full list of funding criteria and conditions for 2021/22.

Who makes the funding decisions?

All applications will be reviewed by the organization’s Research Funding Advisory Committee (RFAC) comprised of researchers, clinicians, scientists, and the Duchenne Family Advisory Committee (DFAC), including family members and individuals living with Duchenne muscular dystrophy. Jesse’s Journey Board of Directors makes the final funding decision based on the recommendations presented by both the RFAC and DFAC.

Our 2021/22 Research Funding Advisory Committee (RFAC): 

  1. Dr. Lisa Hoffman, RFAC Chair – Associate Scientist at the Lawson Health Research Institute, London, Ontario
  2. Dr. Jeff Chamberlain – Professor in the Departments of Neurology, Medicine and Biochemistry at the University of Washington School of Medicine, Seattle, Washington, USA
  3. Dr. Hernan Gonorazky – Pediatric Neuromuscular Specialist and Scientist at the Hospital of Sick Children, Toronto, Ontario
  4. Dr. Hanns Lochmüller – Neuromuscular Specialist and Senior Scientist at the University of Ottawa, Ottawa, Ontario
  5. Dr. Jean Mah – Pediatric Neuromuscular Specialist and Senior Scientist at Alberta Children’s Hospital, Calgary, Alberta
  6. Dr. Toshifumi Yokota – Professor in the Department of Medical Genetics at the University of Alberta, Edmonton, Alberta

Our 2021/22 Duchenne Family Advisory Committee (DFAC): 

  1. Frank Provenzano –  Duchenne Family Advisory Committee Lead and Father
  2. Kerri Denysiuk – Mother
  3. Marie-Catherine Duberger – Mother
  4. Rebekah Kember – Sister
  5. Kasha Mitton – Mother
  6. Darlene Morden – Mother
  7. Eric Morden – Young Adult with Duchenne
  8. Lorrie Power – Mother
  9. Racheal Prendergast – Mother

These exceptional volunteers dedicate their time to this vital process, helping us decide where our donors’ generous gifts will make the most significant impact on the lives of those living with Duchenne – thank you to these 16 outstanding individuals. 

Research grant process

Jesse’s Journey application process involves two stages of submission and review:

Stage 1 – Letters of Intent (LOI)

LOI’s will be rigorously reviewed by the organization’s Research Funding Advisory Committee (RFAC) and the Duchenne Family Advisory Committee (DFAC). All projects will be scored and shared between committees before final decisions are made. Proposals will be assessed based on defined criteria and conditions, as described above. Only a subset of applicants successful at accomplishing this first stage will then be invited to submit their full applications.

Stage 2 – Full Applications

Selected applicants will be invited to submit full applications which will be rigorously reviewed once again by the organization’s Research Funding Advisory Committee (RFAC), Duchenne Family Advisory Committee (DFAC), and an outside expert reviewer(s) specific to each application. Final decisions on successful applications will be made by the Jesse’s Journey Board of Directors.

How do I apply?

Our submission portal is now closed for 2021/22 funding. Please check back in the fall of 2022 for more information on next year’s cycle.

For additional information or questions, please contact:

Nicola Worsfold
Director of Research and Advocacy
Jesse’s Journey
[email protected]

Want to learn more about the research currently funded by Jesse’s Journey?