Jesse's Journey Foundation

“Making the decision to have a child is momentous. It is to decide forever to have your heart go walking around outside your body.” Author Elizabeth Stone perfectly articulates what it is like to become a parent: the unimaginable joy inextricably linked with an overwhelming sense of responsibility to protect and care for your child. […]

COVID-19 is having a significant impact on every aspect of our lives. While this is an uncertain time for all of us, the fight to defeat Duchenne continues. Below you’ll find Douglas Elton’s inspirational story. His message speaks to the heart of what we’re experiencing right now – conquering our fears, never losing hope, and […]

Walk with Jesse’s Journey to provide a beacon of light within what can otherwise be a very dark place. The Walk to Defeat Duchenne will return on Sunday, May 24, 2020 (rescheduled due to COVID-19 to Monday, September 7, 2020 – World Duchenne Awareness Day). Leading up to this very special date, families – like […]

Unless you’ve experienced it for yourself, it’s nearly impossible to understand the ramifications of finding out your loved one has Duchenne muscular dystrophy. Jesse’s Journey is lucky to have the support of families who are brave enough to share their stories because they know it’s the only way we can hope to inspire understanding and […]

How far would you go for someone you love? That’s a question our family never imagined we’d need to answer. But it turns out – with thousands of kilometres of travel; countless hours, “pokes” and treatments; moving homes; and every heart-wrenching step in between – we already have. We’re the Jancicka family, and we’re reaching […]

As first-time parents, we had the usual enormous hopes and dreams for our new baby son, Eli. Eli’s early months were pretty typical and although he wasn’t doing everything his baby friends were doing, we felt he was just on his own timetable. By age 19 months he was just beginning to walk and he […]

It was a staff member at Max’s daycare centre who first noticed something was wrong.  He fell a lot and was a little behind the other kids when it came to climbing and moving about. We had a feeling that something wasn’t right when Max couldn’t master the ability to jump. We eventually took him to […]

Jesse Davidson was born in London, Ontario, Canada in 1980. He was one of three sons born to John and Sherene Davidson – Tyler is the eldest and Tim is the youngest. When he was six years old, Jesse was diagnosed with Duchenne muscular dystrophy. As a youngster in grade school Jesse was both a […]

My name is Amy Cavalier. My husband Josh and I live in Cambridge, with our two sons, Kaleb and Liam, and both boys have Duchenne muscular dystrophy. We got the diagnosis of Duchenne for both boys when a teacher at school (who knew another student with Duchenne) noticed that Kaleb (7 at the time) was […]

What would you do if you got the call? My wife Heather and I can still remember the day in November 2002 when Heather’s sister Darlene called to tell us their son Eric had been diagnosed with Duchenne muscular dystrophy. Darlene and her husband Mike were obviously distraught. It was a day that would change […]