Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

Defeat Duchenne Family Forum and Celebration Dinner

Presented by

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Join us for the first-ever Defeat Duchenne Family Forum and Celebration Dinner on Saturday, May 25 in London, Ontario.

This unique event – tailored to families in Canada affected by Duchenne muscular dystrophy – will feature updates about the latest research, clinical trials currently recruiting in Canada, the International Preferences for Duchenne Treatments study out of Johns Hopkins University, and more.

The Family Forum will run from approximately 10am – 4pm, followed by the Celebration Dinner beginning at 5pm. Locations will be announced soon!

The program for the day is still being developed – check back for details!


Registration is free for a group of up to 4 people. For each additional person in your group, there is a $25 fee to help cover the costs of the day – please contact Seana at or 519-645-8855 for more information.

Register using the form below – space is limited, so reserve your spot today! Select “Family Forum Only” if you only plan to join us for the forum sessions. Select “Family Forum & Dinner” if you’re able to join us for the Celebration Dinner following the forum.


A special rate of $139/night has been secured for a block of rooms at The Park Hotel London on Friday, May 24 and Saturday, May 25. This beautiful Defeat Duchenne Family Forum - hotel location - The Park Hotel in Londonall-suite hotel is located in downtown London and you can choose a room with one king bed, two queen beds, or a fully accessible room with roll-in shower. Please note that there are only two fully accessible rooms at this hotel – if you are not able to secure a fully accessible room, please contact us and we will help you source a room at another hotel.

Click here to book your room! Please note that the special rate of $139/night is available until April 12, 2019 or until the block sells out. Space is limited. 

Sponsored by:
Catabasis Pharmaceuticals

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