Jesse's Journey Foundation

Vaincre Duchenne. Changer des vies.

Media

Jesse’s Journey is a partnership of science and families dedicated to the discovery of treatments and a cure for Duchenne muscular dystrophy – because parents should not outlive their children ~ Jesse’s Journey Statement of Purpose.

As the only Canadian charity dedicated solely to funding research related to Duchenne, we are known and respected internationally, having granted more than $11.5M to research. The media is an important partner in creating meaningful and impactful stories that reach the Duchenne community around the world. Media looking to write a story about Jesse’s Journey are invited to use information, photos, and videos provided here.

For more information and resources:

FAQ
Photos
Videos

To speak with someone directly, please contact:

Perry Esler
Executive Director
perry@jessesjourney.com
519-645-8855 x227

FEATURED STORY

Catch the Ace - All Year

Do you want to win big and help defeat Duchenne muscular dystrophy at the same time? Let's play Catch the Ace!

Catch the Ace is an online weekly raffle licensed by the Alcohol and Gaming Commission of Ontario (AGCO) starting July 17, 2020. Anyone in Ontario 18+ can play today, help #DefeatDuchenne, and WIN BIG!

Purchase your weekly tickets to play today!

Quest for a Cure - December 5, 2020

A group of nerds got together and asked, "what if..."? What if we could gather a squad of the best people, produce a show, find a community, and raise money for a cure to Duchenne muscular dystrophy?

This inspiration is the fuel that powers Quest for the Cure - a live-play Dungeons & Dragons (D&D) web-series, where eminent D&D players get together to stream charity games online to raise contributions for Duchenne research. Watch and support the next Quest! 

Next Game: Saturday, December 5, 2020, | 5 p.m. PST / 8 p.m. EST

Click here to donate and learn more!

Virtual Defeat Duchenne Family Forum - November 20 - 22, 2020

Register now for the virtual Defeat Duchenne Family Forum – Canada’s only national educational event for people living with Duchenne muscular dystrophy and their family members.

Presented by PTC Therapeutics and in partnership with BC Children’s Hospital, this is the fourth Family Forum hosted by Jesse’s Journey, providing the opportunity for you – families and caregivers navigating the Duchenne journey – to come together with researchers, clinicians, and industry professionals for a virtual weekend full of education, inspiration, and hope

Click here to register today!

Isaac's Trek for Treats: Virtual Edition - October 24, 2020

The fourth annual Isaac’s Trek for Treats took place virtually on Saturday, October 24, 2020. Thank you to everyone who joined the van Asseldonk family in Acton, ON and helped raise more than $1,500 for Duchenne muscular dystrophy research. 

Click here to learn more and donate!

Duchenne Awareness Month - September 2020

Thank you to everyone who joined the mission to #DefeatDuchenne this September!

New this year: Duchenne Awareness Month was recognized by the federal government of Canada! The month was filled with exciting announcements, fundraising events, and education to help raise awareness of Duchenne muscular dystrophy from coast to coast.

Click here to learn more.

Walk to Defeat Duchenne - September 7, 2020 (*NEW DATE*)

The Walk to Defeat Duchenne is the largest annual fundraiser for Jesse’s Journey and unites families from coast to coast to raise awareness for Duchenne muscular dystrophy.

This year, we celebrated the 25th anniversary of Jesse’s Journey, honouring the 1995 walk of John
Davidson as he pushed his son, Jesse, across Ontario. Originally scheduled for May 25, 2020, we quickly reimagined the in-person event and successfully hosted the largest Walk in our 25-year history - 100% online!

Click here to learn more and donate!

 

Squad Up 2020 - September 1 - 30, 2020

For many in the Duchenne community, video games are not only a source of entertainment but a way to transcend physical limitations and build a wide network of friends from around the world.

With 56 gamers, a big THANK YOU to everyone who participated in this year's event helping to raise funds for Duchenne muscular dystrophy.

Click here to learn more and donate!

Live in the MOVEment - September 1 - 25, 2020

Maggie Aynsley and Kasha Mitton, creators of The MASH Movement, hosted this first-ever Live in the MOVEment - 25 days of movement, mindfulness, and motivation in celebration of Jesse’s Journey 25th anniversary.

For $25, 310 participants from across Canada and beyond received 25 days of live events and pre-recorded online fitness classes from a line up of wellness leaders from across the globe.

Click here to learn more and donate!

Brian Connor's Rice Lake Challenge - August 1 - 31, 2020

Thank you to everyone who supported the virtual Brian Connor's 12th Annual Rice Lake Challenge.

Cyclists, swimmers, paddle boarders and walkers - came together to participate in their own community throughout August, all in support of Duchenne muscular dystrophy research.

Click here to learn more and donate!

Isaac's Birthday Trek - May 29, 2020 (*NEW DATE*)

In honour of Isaac’s seventh birthday his mom, Meghan van Asseldonk, ran for 24-hours on Friday, May 29, 2020.

Thank you to everyone who supported Meghan and made a donation to fund research for Duchenne muscular dystrophy.

Click here to learn more and donate!

Defeat Duchenne Family Forum Montréal - May 20 - 30, 2020 (*NEW DATE*)

Due to COVID-19, the Defeat Duchenne Family Forum presented by PTC Therapeutics and in partnership with La Force DMD was transformed from a one-day "in-person" program into a series of four virtual events from May 20 - 30, 2020.

Thank you for joining us as we came together with researchers, clinicians, and industry professionals to learn about the latest in Duchenne care and research.

Click here to the event recordings and resources.

2019/20 Research Grant Announcement - May 25, 2020

Thanks to you, our donors and supporters, Jesse’s Journey has been the leading funder of Duchenne research in Canada for the past 25 years.

Through your support, researchers from around the world have made great strides, working towards increasing the quality and longevity of life for people living with Duchenne. The pipeline of potential treatments has never been so full of promise and we invite you to learn about the 2019/20 Jesse's Journey Research Grants.

Click here to learn more.

Cullen and Caden's Cause - May 19, 2020

Stephen and Rachael Prendergast are launching Cullen and Caden's Cause in honour of their fight against Duchenne for their two young boys. Please join them as they dedicate their lives, in partnership with Jesse’s Journey, to ensure Cullen and Caden’s lives remain full of joy and possibility.

Click here to learn more and donate.

Mother's Day MASHup - May 10, 2020

On Mother's Day, we celebrated YOU - the wonderful Duchenne caregivers and mother's across Canada.

Maggie Aynsley from Power Yoga Canada and Kasha Mitton from Yoga Now Kamloops hosted a free hour of virtual yoga.

Click here to learn more and donate!

COVID-19 & Duchenne: FAQ Webinar - April 2, 2020

Jesse's Journey hosted a webinar, COVID-19 & Duchene: FAQ, on Thursday, April 2, 2020, to help answer questions from the Canadian Duchenne community.

Click here to watch the webinar recording.

Thank you to the six healthcare partners and Duchenne experts for sharing their guidance on how you can continue to keep your family safe: Dr. Craig Campbell Pediatric Neurologist and Director of the Neuromuscular Clinic Children’s Hospital London Health Sciences (London, Ontario) Dr. Jean Mah Pediatric Neurologist and Director of the Neuromuscular Program, Alberta Children’s Hospital (Calgary, Alberta) Dr. Jordon Sheriko Physiatrist and Medical Director of Pediatric Rehabilitation, IWK Health Centre (Halifax, Nova Scotia) Dr. Erin O’Ferrall Adult Neurologist, Montreal Neurological Hospital (Montreal, Quebec) Dr. Refika Ersu Pediatric Respirologist, Children’s Hospital of Eastern Ontario (Ottawa, Ontario) Dr. Karina Top Infectious Disease Specialist at IWK Health Centre (Halifax, Nova Scotia)

HKSA Volleyball Tournament - January 25, 2020

The University of Ottawa Human Kinetics Students Association (HKSA) hosted its third annual Indoor Volleyball Tournament in support of Jesse's Journey and Duchenne muscular dystrophy.

Click here to learn more.