Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

CURRENT EVENTS

 

Walk to Defeat Duchenne - September 7, 2020 (*NEW DATE*)

The Walk to Defeat Duchenne presented by Sbenati Dentistry has been rescheduled to Monday, September 7, 2020 (World Duchenne Awareness Day) - this means more time to grow your team and raise vital funds!

While making plans during this uncertain time is challenging, we hope you will refocus your efforts online - by encouraging your supporters to donate towards your Walk and sharing your participation on social media.

Click here to learn more, register, and donate.

 

Brian Connor's Rice Lake Challenge - August 29, 2020

Registration is now open for Brian Connor's 12th Annual Rice Lake Challenge on Saturday, August 29, 2020.

Calling all cyclists, swimmers, paddle boarders and walkers - participate in this beautiful day of fun all in support of Duchenne muscular dystrophy research.

Click here to learn more, register, and donate.

Please keep an eye on this page as the details may change due to COVID-19.

Isaac's Birthday Trek - May 29, 2020 (*NEW DATE*)

In honour of Isaac’s seventh birthday his mom, Meghan van Asseldonk, will be running for 24-hours on Friday, May 29, 2020. Register to run or make a donation in support of Jesse's Journey and Duchenne muscular dystrophy research.

Click here to learn more, register, and donate.

Defeat Duchenne Family Forum Montréal - May 20 - 30, 2020 (*NEW DATE*)

Due to COVID-19, the Defeat Duchenne Family Forum presented by PTC Therapeutics and in partnership with La Force DMD has been transformed from a one-day "in-person" program into a series of four virtual events taking place May 20 - 30, 2020.

Join us as families and caregivers navigating the Duchenne journey across Canada come together with researchers, clinicians, and industry professionals to learn about the latest in Duchenne care and research.

Click here to learn more and register.

2019/20 Research Grant Announcement - May 25, 2020

Thanks you to - our donors and supporters, Jesse’s Journey has been the leading funder of Duchenne research in Canada for the past 25 years.

Through your support, researchers from around the world have made great strides, increasing the quality and longevity of life for people living with Duchenne. The pipeline of potential treatments has never been so full of promise and we invite you to learn about the 2019/20 Jesse's Journey Research Grants.

Click here to learn more and register.

Cullen's Cause - May 19, 2020

Stephen and Rachael Prendergast are launching Cullen's Cause in honour of their fight against Duchenne for their young boy. Please join them as they dedicate their lives, in partnership with Jesse’s Journey, to ensure Cullen’s life remains full of joy and possibility.

Click here to learn more and donate.

Mother's Day MASHup - May 10, 2020

This Sunday is Mother's Day and we want to celebrate YOU - the wonderful Duchenne caregivers and mother's across Canada.

Join Maggie Aynsley from Power Yoga Canada and Kasha Mitton from Yoga Now Kamloops for a free hour of virtual yoga:

Click here to learn more, register, and donate.

COVID-19 & Duchenne: FAQ Webinar - April 2, 2020

Jesse's Journey hosted a webinar, COVID-19 & Duchene: FAQ, on Thursday, April 2, 2020, to help answer questions from the Canadian Duchenne community.

Click here to watch the webinar recording.

Thank you to the six healthcare partners and Duchenne experts for sharing their guidance on how you can continue to keep your family safe: Dr. Craig Campbell Pediatric Neurologist and Director of the Neuromuscular Clinic Children’s Hospital London Health Sciences (London, Ontario) Dr. Jean Mah Pediatric Neurologist and Director of the Neuromuscular Program, Alberta Children’s Hospital (Calgary, Alberta) Dr. Jordon Sheriko Physiatrist and Medical Director of Pediatric Rehabilitation, IWK Health Centre (Halifax, Nova Scotia) Dr. Erin O’Ferrall Adult Neurologist, Montreal Neurological Hospital (Montreal, Quebec) Dr. Refika Ersu Pediatric Respirologist, Children’s Hospital of Eastern Ontario (Ottawa, Ontario) Dr. Karina Top Infectious Disease Specialist at IWK Health Centre (Halifax, Nova Scotia)

HKSA Volleyball Tournament - January 25, 2020

The University of Ottawa Human Kinetics Students Association (HKSA) is hosting its third annual Indoor Volleyball Tournament in support of Jesse's Journey and Duchenne muscular dystrophy.

Click here to learn more.

SquadUP!

Thanks to all of the participants and donors, SquadUp! raised $11,000 in 2019. Stay tuned as we unveil the 2020 site and get ready to register your gaming event to raise awareness and funds for Duchenne muscular dystrophy.

Looking to Volunteer for Jesse’s Journey? Fill out the form here

 

Past Events

Defeat Duchenne Family Forum Calgary - November 2, 2019

Join us on November 2nd, 2019 for our Defeat Duchenne Family Forum in Calgary, Alberta.

This unique event - tailored to families in Canada affected by Duchenne muscular dystrophy - features updates from researchers, clinical trials in Canada, standards of care, pharmaceutical progress, registries and why the matter, 'how to' advocate and much more!

Click here for more information and to register

Isaac's Trek for Treats - October 26, 2019

On October 26, 2019, the third annual Isaac’s Trek for Treats took place at Tanners Drive Park in Acton, ON to raise money for Jesse’s Journey, to fund Duchenne muscular dystrophy research. Isaac’s Trek for Treats is a family-friendly costume trail run along the path through Tanners Drive Woodlot.

Donations are still being accepted:  here.

Brian Connor's Rice Lake Challenge - August 24, 2019

It was another beautiful day at Rice Lake for the 11th annual Brian Connor's Rice Lake Challenge.

Cyclist, swimmers, paddle boarders and walkers all participated throughout the day raising more than $20,000!

To donate to Brian Connor's Rice Lake Challenge, click here

Brock Janes Golf Classic - August 24, 2019

It was another great day for the 11th annual Brock Janes Golf Classic.

More details from the day coming soon!

Fleetwood Country Cruize In - May 31, June 1 & 2

An automotive extravaganza like no other!

May 31, 2019
Big Top Show and Kickoff Party featuring:
Paul Revere’s Raiders
Mitch Ryder
Rare Earth's Peter Rivera
Gary Lewis & The Playboys

June 1
Car show - 7am-5pm
Big Top Buffet Dinner Show featuring Tony Orlando

June 2
Car show - 7am-5pm

For more information about the car show and tickets for the Big Top shows, visit http://www.fleetwoodcountrycruizein.com/2019.html

Sponsored By:

Walk to Defeat Duchenne - May 26, 2019

Register now for the Walk to Defeat Duchenne in Springbank Gardens, London ON. Create your personal fundraising page, collect pledges, and walk the route through Springbank on May 26! Click here for more details or to register.

Defeat Duchenne Family Forum and Celebration Dinner - May 25, 2019

Presented by: PTC Logo
Join us on May 25, 2019 for the first Defeat Duchenne Family Forum and Celebration Dinner.

This unique event – tailored to families in Canada affected by Duchenne muscular dystrophy – will feature updates about the latest research, clinical trials currently recruiting in Canada, the International Preferences for Duchenne Treatments study out of Johns Hopkins University, and more.

Click here for more details and to register.

London Honda BBQ - May 24 & 25

Join us at London Honda for our annual fundraising BBQ in support of Jesse's Journey! Make a donation and enjoy your lunch and find out more about the great work we are doing on May 24 and 25.
https://www.londonhonda.com/

Virtual Walk-Run-Roll - February 1 - May 26, 2019

Join us for the 2nd annual Virtual Walk-Run-Roll! This virtual event is perfect for individuals, families, friends, or co-workers who want to raise funds to support Duchenne muscular dystrophy research and would prefer to walk, run, or roll in their communities.

Click here for more information about the Virtual-Walk-Run-Roll and to register!

HSKA Volleyball Tournament - January 20, 2019

Thank you to the Human Kinetics Students Association for hosting their second annual Indoor Volleyball Tournament for Duchenne Muscular Dystrophy! The event sold out and raised $900 for Duchenne research! Thank you!