Jesse's Journey Foundation

Defeat Duchenne. Change Lives.

CURRENT EVENTS

Canadians Talk Duchenne - Last Wednesday of Every Month

Amy Cavalier from the Duchenne Canadian Connection and Nicola Worsfold from Jesse's Journey have created Canadians Talk Duchenne, a monthly virtual social for parents and family members living with Duchenne.

The next event will take place on Wednesday, July 28, 2021, starting at 7 p.m. EDT.

Learn more and register today!

Squad Up - All Year

Gather your friends and family around the table, live stream your games online, or dust off your old game console, the most important part is to have fun while knowing you're making a difference in the lives of hundreds of families. Will you join the challenge? Squad up to #DefeatDuchenne!

Register for Squad Up today!

Cullen & Caden's Cause - All Year

Stephen and Rachael Prendergast are launching Cullen and Caden's Cause in honour of their fight against Duchenne for their two young boys. Please join them as they dedicate their lives, in partnership with Jesse’s Journey, to ensure Cullen and Caden’s lives remain full of joy and possibility.

Click here to learn more and donate.

Defeat Duchenne Canadian Conference - Session 2: September 10/11, 2021

Registration is now open for session two of the inaugural CPD-accredited Defeat Duchenne Canadian Conference, focussing on neuromuscular management and the transition from pediatric to adult care.

Hosted by Jesse's Journey, in partnership with the Neuromuscular Disease Network for Canada (NMD4C) and Muscular Dystrophy Canada (MDC), this is the first national summit solely focused on Duchenne muscular dystrophy (DMD) for health care providers across Canada, and the theme for this year's event is 'Addressing DMD Standards of Care in Canada.'

Learn more and register for the second virtual here.

www.dmdcanadianconference.com

Brian Connor's 13th Rice Lake Challenge - Aug 28, 2021

Join Brian Connor in the 13th annual Rice Lake Challenge on Saturday, August 28, 2021. Since 2008 Brian and George have completed a 4.5KM swim across Rice Lake in memory of Brian's two brothers who had Duchenne muscular dystrophy.

Register to swim, cycle, walk, or support the event by donating!

50/50 Raffle - All August

We are excited to announce the launch of our first-ever Defeat Duchenne 50/50 Raffle! Purchase your tickets throughout August at www.defeatduchenne5050.com.

The grand prize winner will be drawn and announced on September 1 at 12:00 p.m.

Tickets: 3 for $10  |  10 for $20  |  50 for $50

Learn more and buy your tickets TODAY!

Quest for the Cure - July 31, 2021

A group of nerds got together and asked, "what if..."? What if we could gather a squad of the best people, produce a show, find a community, and raise money for a cure to Duchenne muscular dystrophy?

This inspiration is the fuel that powers Quest for the Cure - a live-play Dungeons & Dragons (D&D) web-series, where eminent D&D players get together to stream charity games online to raise contributions for Duchenne research. Watch and support the next Quest!

Next Game: Saturday, July 31, 2021, | 5 p.m. PT / 8 p.m. ET

Click here to donate and learn more!

Webinar: Understanding and Managing Behaviour in DMD - June 29, 2021

Jesse’s Journey is committed to bringing together specialists and experts to speak on the topics you – the Canadian Duchenne community – have said you want to learn about.

Join us for the next webinar on 'Understanding and Managing Behaviour in DMD' presented by Clinical Psychologist, Dr. Natalie Truba, on Tuesday, June 29, from 1-3 p.m. EDT.

Register now!

Cloudy's All Nighter - June 26, 2021

Join Allison Sutherland on June 26 2021, at 11am MST as she begins Cloudy's All Nighter with her friends and family.

This event will begin with a 3.1miles (5km) run, and every hour for the next 23 hours they will run an additional mile. The official marathon distance is 26.1miles in 24 hours.

Click here to donate or register! 

Virtual Walk to Defeat Duchenne - May 30, 2021

Uniting families and supporters from coast to coast, join the 2021 Virtual Walk to Defeat Duchenne and help raise awareness of Duchenne muscular dystrophy and funds for research, care, and advocacy.

Whether you participate in the 33 KM Founder's Challenge or choose your own distance, participate by walking in YOUR community on Sunday, May 30, 2021.

Click here to register today! 

Ride for Duchenne - May 29, 2021

On Saturday, May 29, members of the Ottawa East Chapter of the Bondslaves Motorcycle Club are inviting you to kick up your kickstands and ride to raise funds and awareness for Duchenne muscular dystrophy, in honour of Cullen and Caden Prendergast.

Click here to support and learn more! 

The Big Trek for Isaac - May 23, 2021

We invite you to join Meghan in her attempt to run 110 km by travelling 110 km at your own pace and in your favorite way to move. Run, walk, bike, row or roll 110 km from February 2021 to the end of May 2021!

Click here to donate or register! 

2020/21 Research Grant Announcement - May 3, 2021

Thanks to you – our donors and supporters, Jesse’s Journey has been the leading funder of Duchenne muscular dystrophy research in Canada for more than 25 years.

Join us on Monday, May 3, 2021, as we unveil this year’s research grant recipients.

Click here to register!

Virtual Workout to Defeat Duchenne - May 2, 2021

Join the Denysiuk family in their Virtual Workout to Defeat Duchenne on Sunday, May 2, 2021 10a.m. CST/MST (12p.m. EST). Donate $10 or more and you'll be invited to join in on a fun virtual bodyweight workout with a ceritified personal trainer from Balance Fitness Boutique.

Click here to support and learn more! 

Duane's Challenge - March 5 - 7, 2021

To help raise awareness and funds for Duchenne, Duane is challenging himself with the 4x4x48 Challenge from March 5-7, where he will run 4 miles every 4 hours for 48 hours.

Learn more and support!

Quest for the Cure: Episode Zero - February 28, 2021

A group of nerds got together and asked, "what if..."? What if we could gather a squad of the best people, produce a show, find a community, and raise money for a cure to Duchenne muscular dystrophy?

This inspiration is the fuel that powers Quest for the Cure - a live-play Dungeons & Dragons (D&D) web-series, where eminent D&D players get together to stream charity games online to raise contributions for Duchenne research. Watch and support the next Quest!

Next Game: Sunday, February 28, 2021, | 12 p.m. PST / 3 p.m. EST

Click here to donate and learn more!

Rare Disease Day - February 28, 2021

Did you know only 60% of treatments for rare disorders make it into Canada and most get approved up to six years later than other countries?  The sad truth is there are currently no treatments for Duchenne muscular dystrophy approved in Canada.

Sunday, February 28 is Rare Disease Day and we're asking you to help us raise awareness of Duchenne muscular dystrophy.

Learn more and participate.

HKSA Walk for Duchenne - February 6 - 7, 2021

Instead of hosting their annual Indoor Volleyball Tournament, the University of Ottawa Human Kinetics Students Association (HKSA) will be hosting a walk on February 6 and 7, 2021, in support of Jesse's Journey and Duchenne muscular dystrophy.

Learn more and donate!

Past Events

Catch the Ace - All Year

Do you want to win big and help defeat Duchenne muscular dystrophy at the same time? Let's play Catch the Ace!

Catch the Ace is an online weekly raffle licensed by the Alcohol and Gaming Commission of Ontario (AGCO) starting July 17, 2020. Anyone in Ontario 18+ can play today, help #DefeatDuchenne, and WIN BIG!

Purchase your weekly tickets to play today!

Double Your Impact - November 18 - December 31, 2020

You are an essential puzzle piece in the fight against Duchenne.

Throughout November and December, you picked up the pieces to the complex puzzle of Duchenne muscular dystrophy and helped create the beautiful mosaic of HOPE. With your generosity, we surpassed our goal of $100,000 to invest in research that will allow boys and young men around the world to live longer, healthier lives.

Learn more.

Virtual Defeat Duchenne Family Forum - November 20 - 22, 2020

Register now for the virtual Defeat Duchenne Family Forum – Canada’s only national educational event for people living with Duchenne muscular dystrophy and their family members.

Presented by PTC Therapeutics and in partnership with BC Children’s Hospital, this is the fourth Family Forum hosted by Jesse’s Journey, providing the opportunity for you – families and caregivers navigating the Duchenne journey – to come together with researchers, clinicians, and industry professionals for a virtual weekend full of education, inspiration, and hope

Click here to register today!

Isaac's Trek for Treats (Virtual Edition) - October 24, 2020

The fourth annual Isaac’s Trek for Treats took place virtually on Saturday, October 24, 2020. Thank you to everyone who joined the van Asseldonk family in Acton, ON and helped raise more than $1,500 for Duchenne muscular dystrophy research. 

Duchenne Awareness Month - September 2020

Thank you to everyone who joined the mission to #DefeatDuchenne this September!

New this year: Duchenne Awareness Month was recognized by the federal government of Canada! The month was filled with exciting announcements, fundraising events, and education to help raise awareness of Duchenne muscular dystrophy from coast to coast.

Click here to learn more.

Walk to Defeat Duchenne - September 7, 2020 (*NEW DATE*)

The Walk to Defeat Duchenne is the largest annual fundraiser for Jesse’s Journey and unites families from coast to coast to raise awareness for Duchenne muscular dystrophy.

This year, we celebrated the 25th anniversary of Jesse’s Journey, honouring the 1995 walk of John
Davidson as he pushed his son, Jesse, across Ontario. Originally scheduled for May 25, 2020, we quickly reimagined the in-person event and successfully hosted the largest Walk in our 25-year history - 100% online!

 

Squad Up 2020 - September 1 - 30, 2020

For many in the Duchenne community, video games are not only a source of entertainment but a way to transcend physical limitations and build a wide network of friends from around the world.

With 56 gamers, a big THANK YOU to everyone who participated in this year's event helping to raise funds for Duchenne muscular dystrophy.

Live in the MOVEment - September 1 - 25, 2020

Maggie Aynsley and Kasha Mitton, creators of The MASH Movement, hosted this first-ever Live in the MOVEment - 25 days of movement, mindfulness, and motivation in celebration of Jesse’s Journey 25th anniversary.

For $25, 310 participants from across Canada and beyond received 25 days of live events and pre-recorded online fitness classes from a line up of wellness leaders from across the globe.

Click here to learn more and donate!

Brian Connor's Rice Lake Challenge - August 1 - 31, 2020

Thank you to everyone who supported the virtual Brian Connor's 12th Annual Rice Lake Challenge.

Cyclists, swimmers, paddle boarders and walkers - came together to participate in their own community throughout August, all in support of Duchenne muscular dystrophy research.

Isaac's Birthday Trek - May 29, 2020 (*NEW DATE*)

In honour of Isaac’s seventh birthday his mom, Meghan van Asseldonk, ran for 24-hours on Friday, May 29, 2020.

Thank you to everyone who supported Meghan and made a donation to fund research for Duchenne muscular dystrophy.

Defeat Duchenne Family Forum Montréal - May 20 - 30, 2020 (*NEW DATE*)

Due to COVID-19, the Defeat Duchenne Family Forum presented by PTC Therapeutics and in partnership with La Force DMD was transformed from a one-day "in-person" program into a series of four virtual events from May 20 - 30, 2020.

Thank you for joining us as we came together with researchers, clinicians, and industry professionals to learn about the latest in Duchenne care and research.

Click here to the event recordings and resources.

2019/20 Research Grant Announcement - May 25, 2020

Thanks to you, our donors and supporters, Jesse’s Journey has been the leading funder of Duchenne research in Canada for the past 25 years.

Through your support, researchers from around the world have made great strides, working towards increasing the quality and longevity of life for people living with Duchenne. The pipeline of potential treatments has never been so full of promise and we invite you to learn about the 2019/20 Jesse's Journey Research Grants.

Click here to learn more.

Cullen & Caden's Cause - May 19, 2020

Stephen and Rachael Prendergast are launching Cullen and Caden's Cause in honour of their fight against Duchenne for their two young boys. Please join them as they dedicate their lives, in partnership with Jesse’s Journey, to ensure Cullen and Caden’s lives remain full of joy and possibility.

Click here to learn more and donate.

Mother's Day MASHup - May 10, 2020

On Mother's Day, we celebrated YOU - the wonderful Duchenne caregivers and mother's across Canada.

Maggie Aynsley from Power Yoga Canada and Kasha Mitton from Yoga Now Kamloops hosted a free hour of virtual yoga.

Click here to learn more and donate!

COVID-19 & Duchenne: FAQ Webinar - April 2, 2020

Jesse's Journey hosted a webinar, COVID-19 & Duchene: FAQ, on Thursday, April 2, 2020, to help answer questions from the Canadian Duchenne community.

Click here to watch the webinar recording.

Thank you to the six healthcare partners and Duchenne experts for sharing their guidance on how you can continue to keep your family safe: Dr. Craig Campbell Pediatric Neurologist and Director of the Neuromuscular Clinic Children’s Hospital London Health Sciences (London, Ontario) Dr. Jean Mah Pediatric Neurologist and Director of the Neuromuscular Program, Alberta Children’s Hospital (Calgary, Alberta) Dr. Jordon Sheriko Physiatrist and Medical Director of Pediatric Rehabilitation, IWK Health Centre (Halifax, Nova Scotia) Dr. Erin O’Ferrall Adult Neurologist, Montreal Neurological Hospital (Montreal, Quebec) Dr. Refika Ersu Pediatric Respirologist, Children’s Hospital of Eastern Ontario (Ottawa, Ontario) Dr. Karina Top Infectious Disease Specialist at IWK Health Centre (Halifax, Nova Scotia)

HKSA Volleyball Tournament - January 25, 2020

The University of Ottawa Human Kinetics Students Association (HKSA) hosted its third annual Indoor Volleyball Tournament in support of Jesse's Journey and Duchenne muscular dystrophy.

Click here to learn more.