Jesse's Journey Foundation

Defeat Duchenne. Change Lives.



Walk to Defeat Duchenne - September 7, 2020 (*NEW DATE*)

The Walk to Defeat Duchenne presented by Sbenati Dentistry has been rescheduled to Monday, September 7, 2020 (World Duchenne Awareness Day) - this means more time to grow your team and raise vital funds!

While making plans during this uncertain time is challenging, we hope you will refocus your efforts online - by encouraging your supporters to donate towards your Walk and sharing your participation on social media.

Click here to register today!

"Live in the Movement" with The MASH Movement - May 3, 2020 (POSTPONED)

Live in the Movement hosted by The MASH Movement scheduled for Sunday, May 3, 2020, in Montréal, Québec at Hamfit Gym has been postponed. 

Stay tuned for more information regarding the “Live in the Movement” kickoff event - an afternoon of yoga, connection and contribution towards helping children who suffer from Duchenne muscular dystrophy. 

Defeat Duchenne Family Forum Montréal - May 2, 2020 (POSTPONED)

With the growing concerns regarding COVID-19 (“coronavirus”) across Canadian communities and the world, the Defeat Duchenne Family Forum scheduled for Saturday, May 2, 2020, in Montréal, Québec at Shriners Hospitals for Children – Canada has been postponed.

Click here for further information.

Isaac's Birthday Trek - April 4, 2020 (POSTPONED)

In honour of Isaac’s seventh birthday his mom, Meghan van Asseldonk, was planning to undertake a 70 km trail run in support of Jesse’s Journey on  Saturday, April 4, 2020, from Tanners Drive Park in Acton, Ontario to Guelph and back along the Guelph Radial Trail. Registration to run with Meghan in support of Duchenne muscular dystrophy research has been postponed. 


COVID-19 & Duchenne: FAQ - April 2, 2020

Jesse's Journey hosted a webinar, COVID-19 & Duchene: FAQ, on Thursday, April 2, 2020, to help answer questions from the Canadian Duchenne community.

Click here to watch the webinar recording.

Thank you to the six healthcare partners and Duchenne experts for sharing their guidance on how you can continue to keep your family safe: Dr. Craig Campbell Pediatric Neurologist and Director of the Neuromuscular Clinic Children’s Hospital London Health Sciences (London, Ontario) Dr. Jean Mah Pediatric Neurologist and Director of the Neuromuscular Program, Alberta Children’s Hospital (Calgary, Alberta) Dr. Jordon Sheriko Physiatrist and Medical Director of Pediatric Rehabilitation, IWK Health Centre (Halifax, Nova Scotia) Dr. Erin O’Ferrall Adult Neurologist, Montreal Neurological Hospital (Montreal, Quebec) Dr. Refika Ersu Pediatric Respirologist, Children’s Hospital of Eastern Ontario (Ottawa, Ontario) Dr. Karina Top Infectious Disease Specialist at IWK Health Centre (Halifax, Nova Scotia)

HKSA Volleyball Tournament - January 25, 2020

The University of Ottawa Human Kinetics Students Association (HKSA) is hosting its third annual Indoor Volleyball Tournament in support of Jesse's Journey and Duchenne muscular dystrophy.

Click here to learn more.


Thanks to all of the participants and donors, SquadUp! raised $11,000 in 2019. Stay tuned as we unveil the 2020 site and get ready to register your gaming event to raise awareness and funds for Duchenne muscular dystrophy.

Looking to Volunteer for Jesse’s Journey? Fill out the form here


Past Events

Defeat Duchenne Family Forum Calgary - November 2, 2019

Join us on November 2nd, 2019 for our Defeat Duchenne Family Forum in Calgary, Alberta.

This unique event - tailored to families in Canada affected by Duchenne muscular dystrophy - features updates from researchers, clinical trials in Canada, standards of care, pharmaceutical progress, registries and why the matter, 'how to' advocate and much more!

Click here for more information and to register

Isaac's Trek for Treats - October 26, 2019

On October 26, 2019, the third annual Isaac’s Trek for Treats took place at Tanners Drive Park in Acton, ON to raise money for Jesse’s Journey, to fund Duchenne muscular dystrophy research. Isaac’s Trek for Treats is a family-friendly costume trail run along the path through Tanners Drive Woodlot.

Donations are still being accepted:  here.

Brian Connor's Rice Lake Challenge - August 24, 2019

It was another beautiful day at Rice Lake for the 11th annual Brian Connor's Rice Lake Challenge.

Cyclist, swimmers, paddle boarders and walkers all participated throughout the day raising more than $20,000!

To donate to Brian Connor's Rice Lake Challenge, click here

Brock Janes Golf Classic - August 24, 2019

It was another great day for the 11th annual Brock Janes Golf Classic.

More details from the day coming soon!

Fleetwood Country Cruize In - May 31, June 1 & 2

An automotive extravaganza like no other!

May 31, 2019
Big Top Show and Kickoff Party featuring:
Paul Revere’s Raiders
Mitch Ryder
Rare Earth's Peter Rivera
Gary Lewis & The Playboys

June 1
Car show - 7am-5pm
Big Top Buffet Dinner Show featuring Tony Orlando

June 2
Car show - 7am-5pm

For more information about the car show and tickets for the Big Top shows, visit

Sponsored By:

Walk to Defeat Duchenne - May 26, 2019

Register now for the Walk to Defeat Duchenne in Springbank Gardens, London ON. Create your personal fundraising page, collect pledges, and walk the route through Springbank on May 26! Click here for more details or to register.

Defeat Duchenne Family Forum and Celebration Dinner - May 25, 2019

Presented by: PTC Logo
Join us on May 25, 2019 for the first Defeat Duchenne Family Forum and Celebration Dinner.

This unique event – tailored to families in Canada affected by Duchenne muscular dystrophy – will feature updates about the latest research, clinical trials currently recruiting in Canada, the International Preferences for Duchenne Treatments study out of Johns Hopkins University, and more.

Click here for more details and to register.

London Honda BBQ - May 24 & 25

Join us at London Honda for our annual fundraising BBQ in support of Jesse's Journey! Make a donation and enjoy your lunch and find out more about the great work we are doing on May 24 and 25.

Virtual Walk-Run-Roll - February 1 - May 26, 2019

Join us for the 2nd annual Virtual Walk-Run-Roll! This virtual event is perfect for individuals, families, friends, or co-workers who want to raise funds to support Duchenne muscular dystrophy research and would prefer to walk, run, or roll in their communities.

Click here for more information about the Virtual-Walk-Run-Roll and to register!

HSKA Volleyball Tournament - January 20, 2019

Thank you to the Human Kinetics Students Association for hosting their second annual Indoor Volleyball Tournament for Duchenne Muscular Dystrophy! The event sold out and raised $900 for Duchenne research! Thank you!