Join 7 year old Jude Mitton and our family on their quest to defeat Duchenne muscular dystrophy (DMD). DMD is a progressive disease that affects 1 in every 3,500 male births and a rare number of females.
It occurs in all races and cultures. Duchenne can be passed from parent to child but approximately 35% of cases occur because of random spontaneous mutation. This is what happened with Jude. One tiny spontaneous mistake in the gene. Currently, there is some exciting research being done in the pursuit of a cure but more support and monetary resources are needed so these advancements can make it to the children who need them. Did we mention Duchenne is debilitating and progressive? There is no cure for Duchenne. It is 100% fatal.
Sharing our journey has been one way our family has been able to shine light on the impacts of DMD. Since Jude’s diagnosis at the age of 4, our journey has
consisted of numerous trips to Children’s hospitals, many medical interventions including surgery, trial medications, tears, tough conversations and sleepless nights. We are often asked how we hold strength through it all and our answer is always the same; through the love, support, hope and compassion of friends, family and people whose faces we have never met. Our light shines because people care.
Jesse’s Journey is the only Canadian charity that exists solely to fund research for a cure for DMD. Any contribution big or small is what fuels hope in families who are impacted. Your generosity means the world to us.
Kasha, Jeff, Kaia & Jude Mitton
Please feel free to reach out and connect should you or someone you know be interested in creating future events or share ideas. Contact [email protected]