Jesse's Journey Foundation

Defeat Duchenne. Change Lives.


Jesse’s Journey is a partnership of science and families dedicated to the discovery of treatments and a cure for Duchenne muscular dystrophy – because parents should not outlive their children ~ Jesse’s Journey Statement of Purpose.

As the only Canadian charity dedicated solely to funding research related to Duchenne, we are known and respected internationally, having granted more than $11.5M to research. The media is an important partner in creating meaningful and impactful stories that reach the Duchenne community around the world. Media looking to write a story about Jesse’s Journey are invited to use information, photos, and videos provided here.

For more information and resources:


To speak with someone directly, please contact:

Perry Esler
Executive Director
519-645-8855 x227


SquadUP! - Ongoing

Jesse's Journey's newest fundraiser has raised over $11,000!

Thank you to all the participants and donors, keep gaming! Donations can be made at 

Defeat Duchenne Family Forum Montréal - May 2, 2020

Save the date for the next Defeat Duchenne Family Forum coming up on Saturday, May 2, 2020, in Montréal, Québec.

Presented by PTC Therapeutics and in partnership with La Force DMD, this unique educational event provides the opportunity for you - families and caregivers navigating the Duchenne journey, to come together with researchers, clinicians, and industry professionals for a day of education and inspiration.

Click here for more information.