Jesse's Journey Foundation

Defeat Duchenne. Change Lives.


Jesse’s Journey is a partnership of science and families dedicated to the discovery of treatments and a cure for Duchenne muscular dystrophy – because parents should not outlive their children ~ Jesse’s Journey Statement of Purpose.

As the only Canadian charity dedicated solely to funding research related to Duchenne, we are known and respected internationally, having granted more than $9M to research. The media is an important partner in creating meaningful and impactful stories that reach the Duchenne community around the world. Media looking to write a story about Jesse’s Journey are invited to use information, photos, and videos provided here.

For more information and resources:


To speak with someone directly, please contact:

Wendy Sanderson-Culley
Managing Director
519-645-8855 x227


The Journey Continues – April 10, 2018

Registration Now Open! Purchase Your Tickets Here.

This gala event (hosted on what would have been Jesse’s 38th birthday) will see 200 Londoners celebrate the last 20 years of hope and innovation. Featuring the premiere screening of our new documentary, currently in production.

Want to get involved as a sponsor? Click here for more information