Jesse’s Journey is a partnership of science and families dedicated to the discovery of treatments and a cure for Duchenne muscular dystrophy – because parents should not outlive their children ~ Jesse’s Journey Statement of Purpose.
As the only Canadian charity dedicated solely to funding research related to Duchenne, we are known and respected internationally, having granted more than $11.5M to research. The media is an important partner in creating meaningful and impactful stories that reach the Duchenne community around the world. Media looking to write a story about Jesse’s Journey are invited to use information, photos, and videos provided here.
The Walk to Defeat Duchenne presented by Sbenati Dentistry has been rescheduled to Monday, September 7, 2020 (World Duchenne Awareness Day) - this means more time to grow your team and raise vital funds!
While making plans during this uncertain time is challenging, we hope you will refocus your efforts online - by encouraging your supporters to donate towards your Walk and sharing your participation on social media.
Registration is now open for Brian Connor's 12th Annual Rice Lake Challenge on Saturday, August 29, 2020.
Calling all cyclists, swimmers, paddle boarders and walkers - participate in this beautiful day of fun all in support of Duchenne muscular dystrophy research.
Please keep an eye on this page as the details may change due to COVID-19.
In honour of Isaac’s seventh birthday his mom, Meghan van Asseldonk, will be running for 24-hours on Friday, May 29, 2020. Register to run or make a donation in support of Jesse's Journey and Duchenne muscular dystrophy research.
Due to COVID-19, the Defeat Duchenne Family Forum presented by PTC Therapeutics and in partnership with La Force DMD has been transformed from a one-day "in-person" program into a series of four virtual events taking place May 20 - 30, 2020.
Join us as families and caregivers navigating the Duchenne journey across Canada come together with researchers, clinicians, and industry professionals to learn about the latest in Duchenne care and research.
Thanks you to - our donors and supporters, Jesse’s Journey has been the leading funder of Duchenne research in Canada for the past 25 years.
Through your support, researchers from around the world have made great strides, increasing the quality and longevity of life for people living with Duchenne. The pipeline of potential treatments has never been so full of promise and we invite you to learn about the 2019/20 Jesse's Journey Research Grants.
Stephen and Rachael Prendergast are launching Cullen's Cause in honour of their fight against Duchenne for their young boy. Please join them as they dedicate their lives, in partnership with Jesse’s Journey, to ensure Cullen’s life remains full of joy and possibility.
This Sunday is Mother's Day and we want to celebrate YOU - the wonderful Duchenne caregivers and mother's across Canada.
Join Maggie Aynsley from Power Yoga Canada and Kasha Mitton from Yoga Now Kamloops for a free hour of virtual yoga:
Jesse's Journey hosted a webinar, COVID-19 & Duchene: FAQ, on Thursday, April 2, 2020, to help answer questions from the Canadian Duchenne community.
Thank you to the six healthcare partners and Duchenne experts for sharing their guidance on how you can continue to keep your family safe: Dr. Craig Campbell Pediatric Neurologist and Director of the Neuromuscular Clinic Children’s Hospital London Health Sciences (London, Ontario) Dr. Jean Mah Pediatric Neurologist and Director of the Neuromuscular Program, Alberta Children’s Hospital (Calgary, Alberta) Dr. Jordon Sheriko Physiatrist and Medical Director of Pediatric Rehabilitation, IWK Health Centre (Halifax, Nova Scotia) Dr. Erin O’Ferrall Adult Neurologist, Montreal Neurological Hospital (Montreal, Quebec) Dr. Refika Ersu Pediatric Respirologist, Children’s Hospital of Eastern Ontario (Ottawa, Ontario) Dr. Karina Top Infectious Disease Specialist at IWK Health Centre (Halifax, Nova Scotia)
The University of Ottawa Human Kinetics Students Association (HKSA) is hosting its third annual Indoor Volleyball Tournament in support of Jesse's Journey and Duchenne muscular dystrophy.
Thanks to all of the participants and donors, SquadUp! raised $11,000 in 2019. Stay tuned as we unveil the 2020 site and get ready to register your gaming event to raise awareness and funds for Duchenne muscular dystrophy.