Jesse’s Journey is a partnership of science and families dedicated to the discovery of treatments and a cure for Duchenne muscular dystrophy – because parents should not outlive their children ~ Jesse’s Journey Statement of Purpose.
As the only Canadian charity dedicated solely to funding research related to Duchenne, we are known and respected internationally, having granted more than $11.5M to research. The media is an important partner in creating meaningful and impactful stories that reach the Duchenne community around the world. Media looking to write a story about Jesse’s Journey are invited to use information, photos, and videos provided here.
The Walk to Defeat Duchenne presented by Sbenati Dentistry has been rescheduled to Monday, September 7, 2020 (World Duchenne Awareness Day) - this means more time to grow your team and raise vital funds!
While making plans during this uncertain time is challenging, we hope you will refocus your efforts online - by encouraging your supporters to donate towards your Walk and sharing your participation on social media.
Live in the Movement hosted by The MASH Movement scheduled for Sunday, May 3, 2020, in Montréal, Québec at Hamfit Gym has been postponed.
Stay tuned for more information regarding the “Live in the Movement” kickoff event - an afternoon of yoga, connection and contribution towards helping children who suffer from Duchenne muscular dystrophy.
With the growing concerns regarding COVID-19 (“coronavirus”) across Canadian communities and the world, the Defeat Duchenne Family Forum scheduled for Saturday, May 2, 2020, in Montréal, Québec at Shriners Hospitals for Children – Canada has been postponed.
In honour of Isaac’s seventh birthday his mom, Meghan van Asseldonk, was planning to undertake a 70 km trail run in support of Jesse’s Journey on Saturday, April 4, 2020, from Tanners Drive Park in Acton, Ontario to Guelph and back along the Guelph Radial Trail. Registration to run with Meghan in support of Duchenne muscular dystrophy research has been postponed.
Jesse's Journey hosted a webinar, COVID-19 & Duchene: FAQ, on Thursday, April 2, 2020, to help answer questions from the Canadian Duchenne community.
Thank you to the six healthcare partners and Duchenne experts for sharing their guidance on how you can continue to keep your family safe: Dr. Craig Campbell Pediatric Neurologist and Director of the Neuromuscular Clinic Children’s Hospital London Health Sciences (London, Ontario) Dr. Jean Mah Pediatric Neurologist and Director of the Neuromuscular Program, Alberta Children’s Hospital (Calgary, Alberta) Dr. Jordon Sheriko Physiatrist and Medical Director of Pediatric Rehabilitation, IWK Health Centre (Halifax, Nova Scotia) Dr. Erin O’Ferrall Adult Neurologist, Montreal Neurological Hospital (Montreal, Quebec) Dr. Refika Ersu Pediatric Respirologist, Children’s Hospital of Eastern Ontario (Ottawa, Ontario) Dr. Karina Top Infectious Disease Specialist at IWK Health Centre (Halifax, Nova Scotia)
The University of Ottawa Human Kinetics Students Association (HKSA) is hosting its third annual Indoor Volleyball Tournament in support of Jesse's Journey and Duchenne muscular dystrophy.
Thanks to all of the participants and donors, SquadUp! raised $11,000 in 2019. Stay tuned as we unveil the 2020 site and get ready to register your gaming event to raise awareness and funds for Duchenne muscular dystrophy.