September 7 is World Duchenne Awareness Day. On this day, Jesse’s Journey joins forces with organizations from around the world to raise awareness for Duchenne and Becker Muscular Dystrophy (DMD/BMD). Every year, the World Duchenne Organization sets a special theme to the day that that deserves more attention. This year it will be ‘Adult Life & Duchenne’.
Over the past decades, the life expectancy of individuals affected by Duchenne has increased significantly, and adults with Duchenne are not an exception anymore. Adult life with Duchenne comes with new challenges and opportunities as well as new medical issues. This World Duchenne Awareness Day, we are globally advocating for young adults and adults with Duchenne to live their lives to the fullest.
Click the button below to see the full press release and further details about #WDAD2021 at www.worldduchenneday.org/2021-adult-life-and-duchenne.
Why September 7?
Each year, World Duchenne Awareness Day takes place on September 7. The DMD gene, encoding for the dystrophin protein, is the longest human gene known. It consists of 79 exons. This is why 7/9 is the date for World Duchenne Awareness Day.
Become an Ambassador
Jesse’s Journey is looking for young men across Canada to share their experience of living with Duchenne or Becker muscular dystrophy. If you would like to become an ambassador for this important campaign, please email our Manager of Marketing and Stakeholder Engagement, Rochelle ten Haaf, at [email protected].